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Hello members, I hope you are doing well and in good spirits. This is my first day in this community. I have a mild-to-moderate case of HS and usually take oral antibiotics or have had minor incisions or drainage. But I am scheduled to have my very first HUMIRA injection on Aug 30. I am wondering if anyone can shed light on HUMIRA. Successes on efficacy? I am weary and have mixed emotions because I have read feedbacks from HUMIRA site and some are very good but also have seen information that… read more
On it for 6 months now don’t know if it’s working, because I’m trying many other things. About to start infusions tomorrow.
I'm into researching and trying different things to see what works for me. So far, a heart healthy diet helps with HS. I only drink water, nothing else. My flares have been mild and manageable for the… read more
I just have questions. lol
Although my appointment is getting very close Jan. 31st
I’ve researched HS for sooo long.
I’ve cried.
Laughed.
Reminisced.
Self diagnosed myself
Ruled out the possibility I have it.
I’ve been taking pictures for atleast 9 months of some spots I’ve been getting since I was atleast 14.
But these past couple years I have been getting bad acne/sores/deep black heads.
Everything from the family history…. To my joint pain has me almost convinced that my mom and I… read more
On my back at the middle of my shoulders I get deep knots that looks like a black head
Tailbone pain lower back pain every day of my life
Deep blackhead in my butt crack
Sometimes I lift my right… read more
I'm not currently pregnant (hopefully), i'm just curious. I know stress, depression and many other things can effect HS.
thank you all for your very informative and helpful responses, I am trying to conceive and hope that all goes well and that my body and baby will be okay in my HS journey 😊
i will update if i get a… read more
I haven’t become a mother yet and am wondering if this will help my HS, keep it the same or if to expect more flares!
My 1st pregnancy yes no issues but right now with my second is the worst 😞
I'm curious if anyone has had success controlling their HS with diet changes alone. What did you do? I've just finished a 2 week round of doxycycline with zero improvement, in fact it seemed to get worse. Ive had the same sore since Nov 2022. I was recently diagnosed and prescribed doxy at a walk in clinic, and my first dermatologist appointment is next week so I'll find out what my options are then I guess. My mind is going down a rabbit hole thinking I'm going to be on hard-core antibiotics… read more
nope
I'm starting to notate everything I'm eating daily. I eat Ice cream year round. I eat Bread, almost all vegetables, a lot of different fruit, Seafood, Chicken, Beef, and Turkey. No Pork. I drink Cold Drinks sometimes. What's a good diet for HS? Am I doing ok with listing what I'm eating? Where to get a Nutritionist?
@A myHSteam Member I hear you and I am so happy you have found your answer. I just don't think that will work for me. I was also told that it was an internal thing. Most likely an inflammatory… read more
Such as areas that aren’t exposed to air as much like thighs!
Hot baths and medicated lip balm to help them drain faster than triple antibiotic cream after hot bath
I'm so unhappy about this and mad. Am I wrong?
There are going to be days like that. But remember that you are more than this disease alone. Try not let it rob you of your joy.