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2 weeks of antibiotics didn’t help me with flares. In my experience, they never stop the onset of a flare and to me, that is the whole goal, to stop it from flaring.
Does anyone else bleed out from their open lesions when they try getting up out of bed? I'm stage 3, chronic severe. I'm on a strict diet. No dairy, no red meats, no bread, no sugar or refined sugar. Im still having inflammation and can't pin point from what it's being caused.
Hi Gabriel, yes I have been bedbound with HS, on antibiotics(not a cure) Norco, Morphine&Motrin pain management unfortunately there is no cure and cause is unknow. I was diagnosed 52 years ago. I've… read more
Has anyone ever had radiation therapy on their H.S.? If so, how were the results?
Remicade (infliximab)
I have had good response to humira, but I was having other health infections while taking humira, and am stopping humira. I am using spironlactone, benzol peroxide, hebiclend, and clymdamicin. I hope that is enough to keep it at bay. 🙁
Yes. I started having an allergic reaction after taking it for 2 years. I ended up losing a lot of my hair after I stopped taking it.
Thankfully it's finally growing back in.
Hello Team! I'd like to know if anyone have a feeling of extreme heat inside the inner thighs? No boils or anything and both thighs at the same time. 🙏 Thanks
I know, right! HS is too much by itself. 😀
Hi Team. I know there are a lot of us on Humira. Has anyone on Humira done a lot of sweating and if so, did you have flares after?
CandG. I have had Migraines since my youngest daughter, 40 years ago and no doctor ever diagnosed me with Migraines until earlier this month. I only use to get Migraines 1-2 times a year. I Never… read more
Thanks but I m going to ask if there's anything else I can take what are you taking now
Hello HS Team Members. I have to ask to those who are on Humira. Before taking Humira you were restricted from some foods like Night Shades and Dairy Products. Since taking Humira, do you still have the same concerns or do you have more freedom to select what you want without flares as before?
The doctor's office never told me not to eat any specific food. I know not to eat cheese, too many carbs, or too much sugar. However, I love milk and still drink it. I am still trying to get over the… read more
Is or has anyone used the humira treatment and how was the results? Drs wanted me to try it a few years back but it was super expensive even though they had programs that would help the cost and I was worried about the warning about lung issues because my family has lung problems on both sides. I would be interested in anyones results with this treatment and also how hard was it to set up the programs that help pay for it and was it still expensive in the end?? Thanks in advance for any… read more
Has anyone used Humira and has seen good results? I'm seeing my dermatologist in a few weeks and that's what was suggested by the doctor. Just want to go in with all the right questions and knowledge!