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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Are There Any Remedies Or Medications I Could Find To Lessen The Pain?

Are There Any Remedies Or Medications I Could Find To Lessen The Pain?

So I started Humira in December of 2021. I really liked all of the effects and things that it gave me the freedom to do. Well recently i finished my second 3 mon prescription. I was told id get the medicine for a year but it was actually for a total of 6 months and in 2 increments of 3 months worth of medication since my doctor instructed me to take it once a week. Well anyways I cant get a new prescription until i see my doctor again and my appointment isnt until July 25. My is that since ive… read more

Beer And HS.

Beer And HS.

My question is probably out of left field but here we go. Since my HS diagnosis I've been trying to nail down triggers, especially food and drink. I've had great success lowering incidents by removing dairy and anything with yeast in it like bread.

However, I love beer. But since beer is brewed with yeast typically, I had to give it up (with the occasional exception).

Then I had a flash of inspiration. Pasteurizing kills the yeast bacteria, making me think it may be OK and not be an outbreak… read more

When In A New Relationship And Thinking Of Getting Intamate How Do You Address The Topic With The Potential New Partner ?

When In A New Relationship And Thinking Of Getting Intamate How Do You Address The Topic With The Potential New Partner ?

Do you bring it up or not ? If so how do you explain/ describe it ?

A myHSteam Member said:

I just let them know right off if i plan on being intimate. Only because I'd rather it not be a surprise and they feel disgusted with me and it makes me feel worse about myself. I just let them know i… read more

posted about 10 hours ago

No

No

A myHSteam Member said:

Yes I have and I wasn't able to complete the treatments because despite what they say it hurts really really bad (and that's saying a lot from someone who deals with h.s. on a regular basis and who… read more

posted 4 days ago

What Biologic Medications Have You Been Put On To Help With Your Case Of HS?

What Biologic Medications Have You Been Put On To Help With Your Case Of HS?

I have been on Humira, first time was for two years with no improvement, things actually got worse. I then restarted Humira after being off of it for almost a year, and immediately things got worse from what progress I'd had previously. I am seeing a new dermatologist who seems to be more knowledgeable about HS than any other doctors I have seen so far. His plan is for me to be on IV antibiotics (infusion antibiotic) for six weeks and then start Selara. Has anyone had luck with that?

A myHSteam Member said:

I have been on Remicade infusions for a couple months now with no improvement, but the doctor upped my dose and says sometimes it takes time.

posted 27 days ago

Has Anyone Found Underwear That Seem To Work Better For Them?

Has Anyone Found Underwear That Seem To Work Better For Them?

Specifically plus sized women. I recently tried Cheek Boss and am liking the boy shorts so far. Looking for a good bra. I get outbreaks on my breast also.

A myHSteam Member said:

I wear cotton bikini shape panties from Victoria secret it doesn't squeeze the bikini area

posted 9 days ago

Flair Ups Around Menstruation?

Flair Ups Around Menstruation?

I've had hidradenitis for over 20 years now. Has anyone else noticed flair ups a week before menstruation? I've been working with my obgyn to try to figure out a way to stop my cycle completely bc like clockwork, a week before I start, I flair.

A myHSteam Member said:

Thank you everyone for the good advice! I really do appreciate it.

posted about 1 month ago

Open Wound Draining

Open Wound Draining

Hi everyone, I’ve dealt with HS for many years… had surgery under left arm in 2018 and had right underarm surgery done in 2021, two weeks after right arm surgery the spot opened back up. I was on multiple antibiotics but nothing fixed it. Has anyone had any success with natural remedies for healing an open wound? I use hibiclens every night in the shower snd try to keep it dry and covered everyday. I’m trying to avoid having to go back to the surgical route but will do it if there’s no other… read more

A myHSteam Member said:

Thank you so much for all of your help!! Fingers crossed it heals!!

posted about 1 month ago
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