Hidradenitis suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1557 questions
I Have A Lot Of Pain With The Boils And Cysts. Is There Anything That Can Be Used For Severe Pain? My Problem Is In The Groin Area.
A myHSteam Member asked a question 💭
A myHSteam Member

Hi Diann. My problem is in the groin area also with painful boils. I was told a treatment to use by one of our Team Members over a year ago and it worked Everytime for the pain and to make them… read more

posted 4 hours ago
High Protein In Blood With HS?
A myHSteam Member asked a question 💭

i got some blood labs back and they said my blood protein is like 9.5 but my liver and kidney function is good. idk i'm kinda freaking out.

A myHSteam Member

Hi Tracy, it's an antibiotic infusion of 'Ceftracsyx' (I think that's how you spell it!) Along with a 3 week input of 'metronidazole' in tablet form.

posted 6 hours ago
I Have Been On Clindamycin And Rifampicinfor Over A Week Now And Had A Constant Headache. It Never Goes, Sometimes It's Bad. Is This Normal
A myHSteam Member asked a question 💭
A myHSteam Member

Myra09 I'm so sorry

posted 1 day ago
Remicade
A myHSteam Member asked a question 💭

Has anyone had to take spironolactone with remicade I'm waiting for my insurance to approve a higher dosage of remicade because even though there some improvement I'm still flaring I heard methotrexate can cause some serious side effects just wanted to hear everyone thoughts

A myHSteam Member

Wow thanks Shane I think tht what my doctor is going to do next if this remicade is not working I only had three doses so far but I thought there would be more significant changes

posted 3 days ago
Has Anyone Been Intimate With A New Partner After Being Diagnosed? If So, How Did You Approach The Topic Of Oral Sex?
A myHSteam Member asked a question 💭

I'm between stages 2 and 3 in my groin, side boob and armpits, thighs. I also have a lot of scar tissue in and around my labia but only on one side and I'm terrified and already embarrassed. He knows all about the condition and doesn't care...but I still feel like reading and photos are different than being in an intimate situation with me.

A myHSteam Member

Just have to say it warms my heart ❤️ that you have such a supportive partner I'm single I'm terrified to date because of having to explain my hs the draining swelling scar tissue

posted 3 days ago
How Much Zinc Is Safe To Take?
A myHSteam Member asked a question 💭
A myHSteam Member

Over the counter vitamins usually have dosage recommended on the container, but if that’s not enough info for what you need a good pharmacist should be able to answer your question free of charge.

posted 4 days ago
Has Anyone Noticed Any Issues With HS While Dealing With Hot Flashes/night Sweats While Going Through Menopause?
A myHSteam Member asked a question 💭
A myHSteam Member

I just started sweating more than a glisten about 2 years ago. It is gross, sticky and makes me feel so uncomfortable. I have a hard time explaining to people how much I loathe the feeling of my skin… read more

posted 2 days ago
Has Anyone Ever Had Excision Surgery Under Both Armpits?
A myHSteam Member asked a question 💭

I suffer from very bad HS under my armpits and I’m supposed to be seeing a surgeon to discuss excision surgery. I’ve had other surgery’s before but nothing would be as big as this. Any helpful tips or if anyone has had the surgery done can you give me some insight?

A myHSteam Member

My dermatologist gave me some topical antibiotic wipes for my armpits and said to use fragrance free body wash and Deo

posted February 24
I’m New To HS And Def Feel Alone And Have No Idea What I Need To Do. Can I Wear Deodorant? I Haven’t Wore Any Since I Was Diagnosed
A myHSteam Member asked a question 💭

I’m having a flare up real bad in one and I think this one means its coming?

A myHSteam Member

Does anyone notice that even with changes in your deodorant has it helped or not I been using dye free, aluminum zinc free and seems to work but at night seems I start to have this onion smell… read more

posted 3 days ago
Has Anyone Ever Got Their Scars Covered By Tattoos? This Is Affecting My Mental Health Greatly.
A myHSteam Member asked a question 💭
A myHSteam Member

No I haven't and I can relate to the scars affecting mental health and confidence. I have serious issues with my underarms. I've just opted for using tumeric soap daily in the attempt to lessen the… read more

posted February 23 (edited)
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