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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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“Double-Barreled” Blackheads??

“Double-Barreled” Blackheads??

Does anyone else get what looks like a big blackhead under the skin where a boil used to be? I get ones that look like a little tunnel...and the tunnel is filled with blackhead goo.

I’ve tried to treat them like blackheads, but it hasn’t really worked. My HS meds (Metformin) work for my boils, but not these. Pic is from a dermatology website, but this is what they look like.

A myHSteam Member said:

Yes!! I get them all the time. I usually try to pick it out, it drives me crazy.

posted 3 days ago

After Your Wounds Close What Do You Guys Use To Heal The Scars ?

After Your Wounds Close What Do You Guys Use To Heal The Scars ?

I recently had an outbreak that lasted all of 2020 and some of this year. It is just now clearing up. I have scars that are quite embarrassing. I want to clear them up before summer so I can feel comfortable in a bathing suit. Any suggests would be greatly appreciated. I posted a picture of just one example of a scar I’m dealing with.

A myHSteam Member said:

This is EXACTLY why I logged back in. My scars bug the crap out of me. Hoping there’s someone on here that’s had some good results.

posted 10 days ago

Has Anyone Tried Humira As A Form Of Treatment For HS?

Has Anyone Tried Humira As A Form Of Treatment For HS?

I have been prescribed Humira for my HS because nothing else I’ve tried has worked. I just wanted to hear real experiences from real people and not just my doctor.

A myHSteam Member said:

Been on it for over a year no problems, less frequency in flare ups. I can tell when I stop taking it, flare up quick

posted 5 days ago

Although I’ve Had This Problem For A Few Years I’m Still Not All That Sure How To Take Car Of Flares

Although I’ve Had This Problem For A Few Years I’m Still Not All That Sure How To Take Car Of Flares

Most things for me never work (antibiotics, anti inflammatory meds etc) any recommendations specifically for boils that never heal and constantly drain ??

A myHSteam Member said:

Yeaaa antibacterial & anti fungal. It’s a godsend. Good luck!

posted 18 days ago

Has Anyone Gotten The Covid 19 Vaccine And Had A Reaction?

Has Anyone Gotten The Covid 19 Vaccine And Had A Reaction?

Any flare-ups, fatigue, inflammation...

A myHSteam Member said:

I received both doses of the vaccine and I didn’t have any flares up at all.

posted 13 days ago

Does Anyone Know If You Can Get HS Behind Your Ears?!

Does Anyone Know If You Can Get HS Behind Your Ears?!

I feel silly asking this, but every now and again, I will get a painful and large cystic bump behind an ear... seems similar to a typical, minor HS boil. Does anyone know if this is considered HS or something else?

A myHSteam Member said:

I had one behind my ear a while ago also!

posted 21 days ago

Does Anybody Else Experience Fatigue And Weakness During An HS Flare?

Does Anybody Else Experience Fatigue And Weakness During An HS Flare?

I’ve had HS symptoms for about a year but was diagnosed about 6 months ago. I’ve noticed that every time I have a flare I feel run down, my body hurts, and I just want to sleep. Does anybody else experience this?

A myHSteam Member said:

I also feel sluggish and drained

posted 19 days ago

What To You’ll Put Under Arms For Odor ?

What To You’ll Put Under Arms For Odor ?

I’ve tried emuaid , all it does it make a worse smell ? I’ve used this natural tea tree deodorants , what do you’ll use ??

A myHSteam Member said:

Try the deodorant from Mama Au (themamaau.com) her fiance has HS and she created a line of products for HS sufferers!

posted 20 days ago
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