Are There Any Remedies Or Medications I Could Find To Lessen The Pain?

So I started Humira in December of 2021. I really liked all of the effects and things that it gave me the freedom to do. Well recently i finished my second 3 mon prescription. I was told id get the medicine for a year but it was actually for a total of 6 months and in 2 increments of 3 months worth of medication since my doctor instructed me to take it once a week. Well anyways I cant get a new prescription until i see my doctor again and my appointment isnt until July 25. My is that since ive… read more

Beer And HS.

My question is probably out of left field but here we go. Since my HS diagnosis I've been trying to nail down triggers, especially food and drink. I've had great success lowering incidents by removing dairy and anything with yeast in it like bread.

However, I love beer. But since beer is brewed with yeast typically, I had to give it up (with the occasional exception).

Then I had a flash of inspiration. Pasteurizing kills the yeast bacteria, making me think it may be OK and not be an outbreak… read more

When In A New Relationship And Thinking Of Getting Intamate How Do You Address The Topic With The Potential New Partner ?

Do you bring it up or not ? If so how do you explain/ describe it ?

What Was Your Experience With The Remicaide Infusions ?

Any bad side effects? Did it actually help? How long did it take to see results? Hair loss ?

No

How To Find People That Suffer From H.S. Also?

What Biologic Medications Have You Been Put On To Help With Your Case Of HS?

I have been on Humira, first time was for two years with no improvement, things actually got worse. I then restarted Humira after being off of it for almost a year, and immediately things got worse from what progress I'd had previously. I am seeing a new dermatologist who seems to be more knowledgeable about HS than any other doctors I have seen so far. His plan is for me to be on IV antibiotics (infusion antibiotic) for six weeks and then start Selara. Has anyone had luck with that?

Has Anyone Found Underwear That Seem To Work Better For Them?

Specifically plus sized women. I recently tried Cheek Boss and am liking the boy shorts so far. Looking for a good bra. I get outbreaks on my breast also.

Flair Ups Around Menstruation?

I've had hidradenitis for over 20 years now. Has anyone else noticed flair ups a week before menstruation? I've been working with my obgyn to try to figure out a way to stop my cycle completely bc like clockwork, a week before I start, I flair.

Open Wound Draining

Hi everyone, I’ve dealt with HS for many years… had surgery under left arm in 2018 and had right underarm surgery done in 2021, two weeks after right arm surgery the spot opened back up. I was on multiple antibiotics but nothing fixed it. Has anyone had any success with natural remedies for healing an open wound? I use hibiclens every night in the shower snd try to keep it dry and covered everyday. I’m trying to avoid having to go back to the surgical route but will do it if there’s no other… read more