Hidradenitis suppurativa Questions and Answers | myHSteam

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1597 questions
Has Anyone Had HS On Their Face If So What Was The Outcome
A myHSteam Member asked a question 💭
My Doctor Just Put Me On A Medication Called Spironolactone 100 Mg Hopefully This Helps! Is There Anyone Else On This Medication?
A myHSteam Member asked a question 💭
A myHSteam Member

Good luck! Really hope you get some relief with this one x

posted 1 hour ago
Just Started Humeria, Wondering What Results Anyone Has Seen?
A myHSteam Member asked a question 💭

I have stage 3 and have had many surgeries, the last I 2016. I was mostly flare free after that until about a year ago, so now trying humeria. Any input would help.😊

A myHSteam Member

I'm just praying that this will help. I'm not sure what to expect or a timeframe, guess my Dr. will let me know

posted 7 hours ago
My Doctor Said I Had HS But Now After Seeing A Dermatologist He Wants To Do A Biopsy As He’s Not Sure
A myHSteam Member asked a question 💭
A myHSteam Member

Ah I see , thank you

posted 2 days ago
Are They, Scientist,doctors,whoever, Seriously Working On A Permanent Resolution To HS?
A myHSteam Member asked a question 💭

My now 17 year old daughter with Down Syndrome has had HS stage 3 since the age of 12. Between 2020 and 2023 she has had 58 procedures, alternating every other month between having botox injections and laser hair removal. We finally were able to get to a point where all tracts and tunnels were removed from each armpit and she is doing great. 6 months and doing awesome. We still get boils in the groin area because we just knew she wouldn't be able to handle that procedure, so vicks vapor rub is… read more

A myHSteam Member
posted 3 days ago
Has Anybody Ever Used The Native Brand Shampoo, Conditioner, Body Wash? They Have A Couple Certain Scented Ones That Im Addicted To
A myHSteam Member asked a question 💭

They have the scent here in the body wash deodorant. Everything like I had to like contain myself and not get the body wash. I only got the shampoo and conditioner, but I want the body wash so bad they had last year a gummy bear scented oh my gosh oh my gosh.

A myHSteam Member

I have used it for the past year. It hasn't helped nor hurt. I love the eucalyptus and mint scent. I also use the deodorant. It does not last long but it doesn't seem to affect my skin.

posted 1 day ago
Has Anyone Used Cosentyx For HS?
A myHSteam Member asked a question 💭

My insurance will no longer pay for Humira. This medication worked well.

A myHSteam Member

If I understand correctly, the question is "Has anyone used Cosentyx for HS". I was offered Humira 2018 in Sweden, but declined. For the past 4 months I've been on Cosentyx. A month before I changed… read more

posted 5 days ago
Has Anyone Used Castile Soap ( Dr Bronners) With Any Success During A Flareup?
A myHSteam Member asked a question 💭
A myHSteam Member
posted 5 days ago
Has Anyone Had Serious Diorea With Bad Infection?? I'm Still Draining It Smells Like Death And Its Clots ,but Why The Diorea ?
A myHSteam Member asked a question 💭
A myHSteam Member

You might have more than one thing going on. Maybe you’ve picked up an intestinal/stomach bug or gotten food poisoning. Another possibility is if you are on an antibiotic or some other medications it… read more

posted March 7
Best Deoderant?
A myHSteam Member asked a question 💭

I haven't used deodorant or shaved in two years. I have recently noticed increased flares in underarms as I age. With this comes the embarrassing oder with HS leakage. HELP❣️

A myHSteam Member

The second day after feeling a flare I put Aloe Vera Oil under arms and draining stopped and after 2 weeks dried up. Now an occasional itch. Try it it may work for you.

posted March 7
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