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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do You Handle Insensitive Comments Or Misconceptions About HS?

By A myHSteam Member 47 answers

Which HS Symptom Surprised You The Most?

By A myHSteam Member 45 answers

What Is The Most Challenging Part About Living With HS?

By A myHSteam Member 67 answers

What Aspects Of HS Are You Grateful For And Worried About Lately?

By A myHSteam Member 26 answers
2168 questions

Ladies With Hormonal IUD. Did Your Flares Start/get Worse When You Got The IUD?

A myHSteam Member asked a question 💭
Troy, NY

I got my Kyleena IUD placed back in 2019. I got my first ever flare up a month later and have been dealing with them ever since. I’m starting to think that it is directly related to my hormonal BC. Has this happened for anyone else?

What’s Everyone’s Food Triggers? If You Have Any?

A myHSteam Member asked a question 💭
Bronx, NY
A myHSteam Member

Sugar and Dairy

9 hours ago

How Is Everyone Today? I Hope The Day Wasn’t Too Hard On You 💗

A myHSteam Member asked a question 💭
Bronx, NY

Is There Any Correlation Between The Birth Control Nexplanon And HS?

A myHSteam Member asked a question 💭
Lake Elsinore, CA

I have also recently tested positive for allergy to all grains including rice and corn. Never had problems before. I have had several anemias and moderate bone marrow failure since infancy to include neutropenia, thrombocytopenia, and aplastic anemia. I also recently tested slight positive for prp protein but no syphilis. I don't smoke and I'm not obese but my HS is considered severe, I'm not able to take HS meds due to my anemia. I'm a 24 year old female.

A myHSteam Member

I don’t know for sure but after my daughters birth via c section I went on nexplanon and almost instantly my HS went haywire and has unfortunately gotten worse since, been 3 years. I did ride it out… read more

5 days ago

How To Get Rid Of The Smell From The Leaking Lesions

A myHSteam Member asked a question 💭
Perryville, AK
A myHSteam Member

Managing odor from leaking lesions due to hidradenitis suppurativa (HS) can be challenging. Here are some strategies based on my knowledge base:

- Use Antiseptic Washes: Clean the affected area with… read more

5 days ago

Yes Can Recommend A Good Scar Cream For My Armpits

A myHSteam Member asked a question 💭
Apple Valley, CA

I have HS had for quite a while now now I have terrible scarring under my armpits.

A myHSteam Member

When dealing with hidradenitis suppurativa (HS) scars under the arms, some options to consider include:

- Silicone-based treatments: These come in various forms and can be effective for different… read more

5 days ago

After Having Hs For 5 Years I Have Come To One Conclusion That No Medicine Is Going To Help Until N Unless U Maintain Ur Diet N Stay Fit

A myHSteam Member asked a question 💭
West bengal ,Kolkata

Hi Everyone, Is There Anyone Who Have Tried The Carnivore Diet To See If It Helps?

A myHSteam Member asked a question 💭
Pretoria, ZA
A myHSteam Member

Yolandie I believe totally that what you put in your mouth directly affects your general health, and for me it directly affects my HS. So you may be interested in knowing that if you feel sugar is… read more

3 days ago

Also, If You Are On HUMIRA, That Is The Medication You Are Currently Taking. Have You Seen Any Weight Gain With That?

A myHSteam Member asked a question 💭
Cincinnati, OH
A myHSteam Member

I have not seen any weight changes with Humira

7 days ago

Hello, I Just Started My First Treatment With Humira, If You Have Been Taking The Medication Humira, Have You Seen Results Of Improve?

A myHSteam Member asked a question 💭
Cincinnati, OH
A myHSteam Member

I have been on Humira for about 3 years also, at first I was taking every other week and I would have some occasional flair ups, The doctor changed me to weekly since I started weekly about 4 months… read more

7 days ago
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