Hidradenitis suppurativa

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Does anyone else have a facial pain/tooth problem???

Does anyone else have a facial pain/tooth problem???

Hi All,

Sorry for the odd question but I have done some research as I suffer with chronic facial pain/toothache... I was wondering if anyone has the same problem as me??? if you do please reach out to me and let me know

A myHSteam Member said:

Yes! Right hand side of my face I get a hot pain...doesn’t go with painkillers and I can’t pinpoint if it is triggered by anything. I can go weeks… read more

posted about 5 hours ago

Does anytone suffer like this???

Does anytone suffer like this???

I have 2 cysts/boils that have been playing up for around a month now... they pop and then come back again... any advice would be greatful <3

A myHSteam Member said:

Witch hazel is useful definitely on more sensitive areas

posted 2 days ago

How to prevent the smell

How to prevent the smell

Since I was diagnosed with HS I’ve noticed a smells that too me is a horrible smell under my armpit, yes I know maybe sweat could be involved but it’s not that kinda smell. I shower 3-5 times a day just so It’s clean and doesn’t smell. Can anyone recommend me something to help with this if you’ve had it.

A myHSteam Member said:

I've done the 3 showers a day, tried all manner of things to take away the stench I can categorically smell. My husband says he can't smell it, My Mum… read more

posted 1 day ago

Does any follow the autoimmune protocol diet?

Does any follow the autoimmune protocol diet?

And if so, have you noticed any difference? With staying away from inflamation causing foods have you noticed a decrease in flare ups? I am looking i to AIP, as I have HS, diabetes, and psoriatic arthritis.

A myHSteam Member said:

For me it's what are called nightshade vegetables ... Potatoes, peppers, eggplant, and I eat less tomato. If I avoid especially potatoes I have only had… read more

posted 3 days ago

Boils on face.

Boils on face.

Does anyone else suffer with boils on their face?
I get flare ups often, they are really angry and cause my face to swell really bad.
I’ve had 3 in a row last few months.
Not been properly diagnosed but, was offered surgery a long time ago on my groin area. Refused as it was so invasive.
My mum also has this condition.
Is it worth going back to doctors? Referral time in the UK can take ages to see a dermatologist.
Help and advice would be much appreciated.

A myHSteam Member said:

I've not had them on the front of my face, but on my neck and ears and under my chin I have. I'm in the UK too and a referral to see a dermatologist is… read more

posted 1 day ago

Does anyone have issues with cysts due to their HS?

Does anyone have issues with cysts due to their HS?

Since being diagnosed with HS I have become prone to cysts in different areas that have required surgery to remove. Has anyone else had anything like this happen and what have you found helps?

A myHSteam Member said:

Im starting my course of surgery. I did my left arm pit last week wasnt to bad pain was not bad. I now have to go for a skin graph to cover the gaping… read more

posted 27 days ago

Dressings to promote healing

Dressings to promote healing

Hi all,
I just got diagnosed but have suspected I have hs for a while. My problem area is my groin. I've picked at any bumps that occur which means I have some open wounds. I don't have the Typical puss, but just lots of red angry skin that's open. Lots of blood/fluid initially came out but is stable now. I'm on oral minocycline and clindamycin ointment. This one area just won't freaking heal, and it's right on the underwear line. Any tips?

A myHSteam Member said:

Ask for an injectable in addition to your current meds.

posted 15 days ago

Which deododorant is the best ?

Which deododorant is the best ?

A myHSteam Member said:

I kid you not, the best deodorant in the world is Sauve Clinical.

posted 7 days ago

Has anyone had armpit surgery?

Has anyone had armpit surgery?

How was it? And did it help? Pretty nervous about it.

A myHSteam Member said:

Alliecat ive had 16 surgerys and i still get them bad... Your one of the lucky ones x

posted 21 days ago
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