To everyone who has taken Humira and medications like such to help your HS, How do you like it? Do you feel like it helped or made it worse? The only medication that has really helped to keep my HS stable is Doxycycline, but it caused me stomach problems and I really want to find out more about other treatment methods. I’m nervous to start such a medication and want to know some feedback to try and base my decision off of people who have or are currently doing the treatment, because they would… read more
Last weekend my son was transferred to a Children's Hospital in Ft. Worth. I had to keep driving back and forth for days between home and his hospital. I think I drove approx 400 miles over the weekend. Caused my HS to flare up horribly on my bottom. Went to see derm yesterday and she did an injection into the largest cyst and added more prescriptions to my med routine. I have not been able to sit down all week now, especially after the injection (made the cyst feel even larger and more… read more
Diagnosed with hs in 1996, but my options were only surgical when inflamed as there are too many and then there were no other treatments. Any and all info is accepted🙂
I started showing symptoms at 13 years of age. The doctor I was seeing told me I was just unclean and told me to wash better. However, I always knew it was more. As you all know it then can eat away at you mentally. I didn’t truly learn what I had till my mid 20s and the. Confirmed it when I was pregnant with my first child at 27/28. Even though the flares are getting worse I still struggle to be taken seriously it seems. Last time I asked about medical intervention I was told to that surgery… read more
Just trying to find the way out of taking medications for life. I'm currently working ever so slowly on GF/DF diet and just incorporating more fiber and trying to workout more. But its so hard when you literally have the desire to do nothing and of course GF/DF food is extremely expensive. Help!
I currently have a flare and go to the doctor tomorrow. I’m almost sure they will recommend antibiotics. Several years ago I got a bad colon infection (c.difficile) from taking antibiotics and have had IBS and other gastro problems since then. I was wondering what other people’s doctors are saying about being on antibiotics long-term and gut health. Do you use probiotics regularly?
HidraWear is something you wear that can keep bandages secure. See hidrawear.com for more info
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