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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Are The Best Ways To Keep Boils From Happening?

What Are The Best Ways To Keep Boils From Happening?

I am just now actually looking into what this doctor said that I have. For several years now, I just kept getting boils in my groin area and I felt like I wasnt washing well enough. I keep getting anerobic bacterial infections. The hair follicles that the boils start in become these huge open places that never totally close up. Also my scars are darker. I started putting bleach into my bath water like my nephew does during wrestling season to try and keep clean. Then I started getting then on my… read more

A myHSteam Member said:

Hey girl!! My name is Sally n I was diagnosed with HS this year.. I'm gonna b 35 in March.. I thought I had STDs for a long time n couldnt understand why all the tests kept coming negative.. I gt… read more

posted 9 days ago

What Is That Shot They Jab Your Boils/lymph Knots With? What’s The Purpose Of It?

What Is That Shot They Jab Your Boils/lymph Knots With? What’s The Purpose Of It?

Last month I got stuck with a needle under my arm. The dermatologist told me to clamp down on a cotton cloth. Which left my arm feeling inflamed and hurting. The swollen nodes went down, but came right back. I’m not understanding! and he didn’t explain anything except what I already knew and the appointment lasted maybe 15 minutes. I knew I had HS last year when I realized on a few YouTubers vlog that I wasn’t the only one who suffered from this mess. When I was 12years old no one knew what it… read more

Covid Vaccine

Covid Vaccine

I Was Wondering Are We Able To Get A Covid Vaccine If We Are On Humira For Our HS? Because My Primary Doctor Said It Should Be Fine. But That He’s Really Unsure That I Need To Ask My Dermatologist First?

A myHSteam Member said:

My dermatologist told me a 100 percent to get the vaccine and I am also on Humira.

posted 15 days ago

Bra

Bra

What do you women wear for bra?

Vaccine Side Effects With HS?

Vaccine Side Effects With HS?

Did you have any side effects from c19 vaccination? Which vaccine did you receive?

A myHSteam Member said:

Nope. The only side effect was that when it wore off in 6 months I got covid lol

posted 24 days ago

How Do I Know In What Stage I Am With Hs

How Do I Know In What Stage I Am With Hs

How can i find out what stage i am cuase the doctor that diagnosed me moved back to USA and I'm living in south Africa

Have Any Women Fou D Relief From HS After Going Through Menopause?

Have Any Women Fou D Relief From HS After Going Through Menopause?

I have been doing research on a more permanent solution for my HS and found articles saying that the flare-ups stop after you go through menopause. I am going to ask my doctor about getting a hysterectomy for this reason as I am almost 40 and do not want children. I am wondering if anyone else has had success with this? I tried hormonal birth control and it has been a nightmare. Almost a constant period and repeat flare-ups that I did not have before trying the birth control.

A myHSteam Member said:

I am almost 20 yrs post menopause and still have flare ups. If that's your only reason, keep your parts.

posted 26 days ago

ER Now, Or Doctor Tomorrow?

ER Now, Or Doctor Tomorrow?

Hello, how do you decided? I have a really bad abcess on my upper left Thigh, near Hip. I'm usually quick to go to ER, but don't know if i should just wait to go to Doctor, tomorrow?

A myHSteam Member said:

I used to do that, but the HS has spread so much you can't see where one boil stops and another begins. I don't know where to lance it anymore. I have to wait until it turns black and blue. The… read more

posted about 2 months ago

Has Anyone Filed For Disability With Their HS?

Has Anyone Filed For Disability With Their HS?

A myHSteam Member said:

Can someone tell me if i can apply for the disability here in South Africa. TIA

posted 14 days ago
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