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Hidradenitis suppurativa

Questions + Answers

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Should I Take Humira?

Should I Take Humira?

To everyone who has taken Humira and medications like such to help your HS, How do you like it? Do you feel like it helped or made it worse? The only medication that has really helped to keep my HS stable is Doxycycline, but it caused me stomach problems and I really want to find out more about other treatment methods. I’m nervous to start such a medication and want to know some feedback to try and base my decision off of people who have or are currently doing the treatment, because they would… read more

posted about 12 hours ago
A myHSteam Member said:

I’ve been on it for a year I think it keeps it in check

posted about 5 hours ago

For Those With HS On Bottom - How Do You Drive/travel Long Distance?

For Those With HS On Bottom - How Do You Drive/travel Long Distance?

Last weekend my son was transferred to a Children's Hospital in Ft. Worth. I had to keep driving back and forth for days between home and his hospital. I think I drove approx 400 miles over the weekend. Caused my HS to flare up horribly on my bottom. Went to see derm yesterday and she did an injection into the largest cyst and added more prescriptions to my med routine. I have not been able to sit down all week now, especially after the injection (made the cyst feel even larger and more… read more

posted 1 day ago
A myHSteam Member said:

Try getting several ice packs. Cold packs but freeze them get a cooler with ice so can change then every so often. Being honest nothing is gonna truly help. But this is a simple fix.😗🤭

posted 1 day ago

Is There A Link Between Hs And Squamous Cell Carcinoma?

Is There A Link Between Hs And Squamous Cell Carcinoma?

Diagnosed with hs in 1996, but my options were only surgical when inflamed as there are too many and then there were no other treatments. Any and all info is accepted🙂

posted 1 day ago

Who Or What Source Of Information On HS Has Been Most Helpful To You?

Who Or What Source Of Information On HS Has Been Most Helpful To You?

posted 3 days ago
A myHSteam Member said:

It has been helpful to share how I and others feel about HS. Gaining information on things to try to seenif they work for me.

posted about 15 hours ago

How Do You/did You Advocate For Yourself To Get The Best Medical Treatment?

How Do You/did You Advocate For Yourself To Get The Best Medical Treatment?

I started showing symptoms at 13 years of age. The doctor I was seeing told me I was just unclean and told me to wash better. However, I always knew it was more. As you all know it then can eat away at you mentally. I didn’t truly learn what I had till my mid 20s and the. Confirmed it when I was pregnant with my first child at 27/28. Even though the flares are getting worse I still struggle to be taken seriously it seems. Last time I asked about medical intervention I was told to that surgery… read more

posted 4 days ago
A myHSteam Member said:

Keep pushing for more help, I once got told I just had dry skin and got prescribed moisturiser before I saw an actual dermatologist!

posted about 13 hours ago

What Vitamins/supplements Have Helped With Your HS? I Also Have PCOS And Hypothyroidism.

What Vitamins/supplements Have Helped With Your HS? I Also Have PCOS And Hypothyroidism.

Just trying to find the way out of taking medications for life. I'm currently working ever so slowly on GF/DF diet and just incorporating more fiber and trying to workout more. But its so hard when you literally have the desire to do nothing and of course GF/DF food is extremely expensive. Help!

posted 10 days ago
A myHSteam Member said:

I haven't tried these diets exactly, but do live a dairy free lifestyle. I have found it makes no difference with my flare ups. I saw my dermatologist 2 days ago and she told me to go on a vegan dietread more

posted 8 days ago
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Has Anyone Had Gastrointestinal Problems From Using Antibiotics For Hidradenitis?

Has Anyone Had Gastrointestinal Problems From Using Antibiotics For Hidradenitis?

I currently have a flare and go to the doctor tomorrow. I’m almost sure they will recommend antibiotics. Several years ago I got a bad colon infection (c.difficile) from taking antibiotics and have had IBS and other gastro problems since then. I was wondering what other people’s doctors are saying about being on antibiotics long-term and gut health. Do you use probiotics regularly?

posted 13 days ago

Has Anyone Tried HidraWear??? Looking For Reviews.

Has Anyone Tried HidraWear??? Looking For Reviews.

HidraWear is something you wear that can keep bandages secure. See hidrawear.com for more info

posted 17 days ago
A myHSteam Member said:

I looked at the web site....I think these products are fantastic...there are plenty of good reviews on the site...its so hard to hold a bandage in place without the use of painful tapes, etc

posted 17 days ago

Has Anyone Tried Inflectra Infusions? If So, How Was Your Experience? Any Side Effects?

Has Anyone Tried Inflectra Infusions? If So, How Was Your Experience? Any Side Effects?

posted 17 days ago
A myHSteam Member said:

I was advised that it can't be passed on through birth and that it's also not contagious. It is in my family though, my mom and my son

posted 17 days ago
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