I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD

Hi so I’ve just started my journey into finding out if I do indeed suffer from HS. I’ve been suffering for around 20 years but I’ve never looked into an any diagnosis because I thought that was just me. I’ve recently had a pilonidal cyst removed and I’m on a round of antibiotics as my stitches have become infected :(
My doctor has also prescribed me a low dose antibiotic to take for 3 months, a wash and nasal cream to be used for 5 days before they consider referring me to a dermatologist. Did… read more

I have been doing research on a more permanent solution for my HS and found articles saying that the flare-ups stop after you go through menopause. I am going to ask my doctor about getting a hysterectomy for this reason as I am almost 40 and do not want children. I am wondering if anyone else has had success with this? I tried hormonal birth control and it has been a nightmare. Almost a constant period and repeat flare-ups that I did not have before trying the birth control.

I was diagnosed with lupus last year I started having red blotchy blood looking welps all over the lower part of my legs every time I would stand for long periods of time they would also get so dark it look like they were bruising after a time of getting these over and over and over I started getting a what they call butterfly rash on my face I was later diagnosed with lupus I was also told that people that have HS have a tendency to get lupus as well because they are both autoimmune disease… read more

Someone once posted and asked if there were skinny people with HS because they were skinny and have HS. So if you’re skinny and have HS do you still do the things known to aggravate HS? Or do you not drink alcohol or smoke or eat lots of sugar, processed chemical laden foods or saturated fat foods? Or do you know to be allergic to night shade foods? Or do you eat a perfect diet and still get HS? If you are skinny, what seems to cause your flares?

Here we go to all of my HS family depending on where your HS is when you sit down do you sit down easy And gently find the rite spot that doesn't hurt to bad and someone comes up to you and ask is everything ok well for me I lie and say my back is hurting because it's a pain in the ass to tell them what's really going on and if I have to sit for a long time that can get to be torturous for me don't get me wrong I'm not embarrassed of my HS (I use to be) but sometimes it's just easier to tell… read more