I wish people would understand that, just because we look well, doesn't mean we are. Also, this disease is chronic for most and one of the most painful and, debilitating conditions. Sometimes we want to be left alone.

How painful the disease can be. And that it's not contagious. Also we are not dirty people. I wish that people would learn about the disease before passing judgement.

I wish Dermotology depts understand that when we have a flare-up, we need t oget in ASAP not 3 months from now. I still cant find a dermo to get in quicker than 2 months from now.

The biggest one for me is we are NOT LAZY!

I wish HS wasn't such a personal thing and other people knew about it. I suppose it would be nice if they knew how devastating it could be. It is hard it is for their friends, family and lovers to understand completely how each of us suffer. Although I hate sympathy, so don't want them to know for that reason! I am one of the lucky ones, and I truly feel for so many people that are so alone with HS!