Do Any Of Y'all Have Lupus And HS | myHSteam

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Do Any Of Y'all Have Lupus And HS
A myHSteam Member asked a question πŸ’­

I was diagnosed with lupus last year I started having red blotchy blood looking welps all over the lower part of my legs every time I would stand for long periods of time they would also get so dark it look like they were bruising after a time of getting these over and over and over I started getting a what they call butterfly rash on my face I was later diagnosed with lupus I was also told that people that have HS have a tendency to get lupus as well because they are both autoimmune disease… read more

posted February 13, 2023
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A myHSteam Member

Yup! SLE/discoid lupus and HS! πŸ™„ What a freaking fantastic combination huh?! There are meds for the spots. Beware of the side effects of plaquenil. And I found some products at Sephora that help with the butterfly rash. Hang on love! This is a rough ride trying to balance lupus and HS. πŸ˜‰ I'll answer whatever questions you have to the best of my ability! πŸ€—

posted February 13, 2023
A myHSteam Member

Kelly a the ambassador does have lupus I think πŸ€” and hs πŸ‘

posted February 13, 2023
A myHSteam Member

I always thought I had lupus as a child dealing with this disease but I wasn’t diagnosed with HS till adulthood. There are a lot of people on here that have other autoimmune co-morbid illnesses, so I definitely feel they are common.

posted February 6
A myHSteam Member

I was told that I would never have children. I have two. They are the joy of my life. I miscarried several. Lost my son's twin. But, here's the thing, I didn't do it! They were simply not meant to be. Both my kids are autistic. My daughter is the oldest and is high functioning, but my son is like a toddler and he is 25 years old. If all my babies had survived, I wouldn't be able to take care of them. I've had to accept that it just was not meant to be, not my fault, and believe that one day I will meet the ones I lost! πŸ˜‰ Fate, God, I don't know. But I have to believe that there is something better, a better place, than how we're living when we pass. πŸ€—

posted February 15, 2023
A myHSteam Member

Thank you Kelly ❀️

posted February 14, 2023

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