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I am also in remission from breast ca and taking an ai med. I am now on Humana which has really helped me with large breakouts. I still get smaller one but not as bad as they used to be.
I have been doing research on a more permanent solution for my HS and found articles saying that the flare-ups stop after you go through menopause. I am going to ask my doctor about getting a hysterectomy for this reason as I am almost 40 and do not want children. I am wondering if anyone else has had success with this? I tried hormonal birth control and it has been a nightmare. Almost a constant period and repeat flare-ups that I did not have before trying the birth control.
HS worsened for me as I started menopause and now that I am post menopause, it is even more horrible!
Sometimes I feel so angry at everything I’m always stressed on when my next flare up is gonna happen the whole no cure thing on top of my already stressful life . What do you guys do if you ever feel like this?
Hybrid, you're Absolutely right!!!😀
I only have groin/butt flares. I’ve never had any armpit or chest spots at all. I’m wondering for those of you who have both is it similar symptoms or do they have key differences?
I have flares in both areas from the start. This is the worst!
I’m having difficulty getting my Humira with my insurance and savings card and I just can’t afford it. I can’t see my doctor until March. What advice can you give for coming off Humira. What other meds can I ask my doctor to try that are cheaper? Anyone else go through this?
Thank you so much! I’ll try that
Thank you so much I will try that. I'm a control freak so I don't like taking anything that messes with my mind and granted yes the hardcore pain meds they give you at the ER is fine but to go home… read more
I was diagnosed with lupus last year I started having red blotchy blood looking welps all over the lower part of my legs every time I would stand for long periods of time they would also get so dark it look like they were bruising after a time of getting these over and over and over I started getting a what they call butterfly rash on my face I was later diagnosed with lupus I was also told that people that have HS have a tendency to get lupus as well because they are both autoimmune disease… read more
I always thought I had lupus as a child dealing with this disease but I wasn’t diagnosed with HS till adulthood. There are a lot of people on here that have other autoimmune co-morbid illnesses, so I… read more
I am managing my HS with an antibiotic gel but it does not help with itching. What can I do to control that?
Thank you, I’ll try it!
Me too.
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
They like to say obesity is a factor, but they can't say why. Which means it's really not.
