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The time between tests and professionals walking was 9 years for 3 examinations, and a photo session for the medical community magazine!
Thanks for noting !
This is getting worst.
Omg do you have a healed photo? Hugs
I went online and applied it was fairly easy for me. A lot of people have trouble but if you have DR history any pictures and proof of treatments that you have done and not working. Hopefully you get… read more
I have had hs for 7 years (diagnosed 6 years ago but refuse to see another doctor or spread my legs to one) because I'm soooo fucking embarrassed I don't even want a doctor to look at me. I know after this many years they will judge me
My whole groin (outer vagina) looks like a rotting steak with maggot holes everywhere. I smell like rotting meat. My response to all of this is doing EVERYTHING and anything that makes it worse because I'm depressed to the point of unaliving myself. I… read more
I have had HS for 50 years. It is a disease. Yes it is embarrassing but you need to get on a good anti-depressant and there are medications that can help. Find a Derm who actually knows what they… read more
I have mild/moderate HS. I antibiotics don’t help since I can only take it for a limited time but I don’t get flairs frequently enough. Recently I’ve been getting more flares, all scarring. Each scar has not been a discoloration scar but rather the sack like scars that are like a deflated balloon. It is hurting my self esteem and affecting me a lot more that it would affect others. I don’t know how to let the scars not control my life …any insight would be wonderful.
The older the scarring gets it seems the worse it feels. My advice take care of scarring immediately!!
The injections help, I get kenalog, sometimes with lidocaine for pain but once its there it stays and will flare again - the only way to truly get rid of them is excision/ deroofing
After my late husband, I have not had an intimate relationship because of fear, shame and anxiety. It’s been years and I’m so lonely. I don’t know how to move forward…
I fear that humiliation. I’m so sorry you have to go through this…
Great attitude MaryKay
Currently using this product and it makes the boils come to a head and drain. It's making them hurt so badly but I'm trying to focus on the end goal. Just curious if anyone else is using it or has tried it. It's not cheap so, not sure many people get it. I just recently came across it and been using for just over a week. I just want to live one day where I walk normal and have no pain!!!! 😣
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
They like to say obesity is a factor, but they can't say why. Which means it's really not.
Seems we are not alone in suffering this disease…
