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I’ve had HS for 25 years, diagnosis for 10 years, stage 3.
Thank you so much, Ashley. I’ll take a closer look!
Hi so I’ve just started my journey into finding out if I do indeed suffer from HS. I’ve been suffering for around 20 years but I’ve never looked into an any diagnosis because I thought that was just me. I’ve recently had a pilonidal cyst removed and I’m on a round of antibiotics as my stitches have become infected :(
My doctor has also prescribed me a low dose antibiotic to take for 3 months, a wash and nasal cream to be used for 5 days before they consider referring me to a dermatologist. Did… read more
This is actually what HS will look like in the very beginning 👇👇😁
Hello! Brand new to this group of support! I have not been diagnosed with HS (yet) but I'm positive this is what I've suffered with for 10-15 years. I've looked for answers online here and there and finally learned about HS recently. All my symptoms seem to match. I felt such relief to know it's a real thing that so many live with! I remember at the beginning going to a doctor about the bumps in my inner thighs and he basically shrugged his shoulders and said it's probably just chaffing from… read more
Hi Lauram......The drag about HS is that most Dr's don't seem very well educated about HS....the same is for dermatologists. There are a few out there, but it's hit and miss whether you find one… read more
Thanks. I’m currently in a flare(for past couple of months) and have noticed my HS worse. It seems to be spreading. Recently moved and changed to a new GP practice and went about the lesions after… read more
The time between tests and professionals walking was 9 years for 3 examinations, and a photo session for the medical community magazine!
Thanks for noting !
This is getting worst.
Omg do you have a healed photo? Hugs
Hi all, I am new here and wanted to get opinions from people taking Doxycycline Hyclate 100mg daily for long term control of your HS. I am concerned about the long term use of it on my gut and all that it does & destroys within the stomach and elsewhere in the body. I was taking it daily for 6 months and it kept my flares to maybe 1 or 2 during that time. I stopped taking it about 4 or 5 months ago and all was good with HS flares. Now in the last 3 weeks or so I have had 2 flares so far.
Also… read more
Bill, I should add that I am in remission now because I am on the keto diet.....it's a tough one at first.....no sugar and no carbs (potatoes, pasta, breads and rices). Let me know if you want more… read more
Some people believe that HS is contagious skin disease or think it's some form of STD , so what information would you like to give to people about HS and about living with HS?
That it is due to uncleanness. I believe that is the reason it has been covered up for so long. People on here have had this thing for 40 years.
Unfortunately, when I get flareups it affects my pelvic area. I think the friction can cause the sores and then wearing them causes it to get worse. Are there any types of underwear that are best to use when you have HS? Thanks in advance.
Mens loose cotton boxer shorts. Let’s more air in and can bunch in groin in jeans for absorbency of sweat. No irritating elastic and crotch is not tight like panties. I had yeast issues for years and… read more
That is True,I Got Some in my abdomen n my waist big cysts too,what I did do was wear one of those Shapewears days in a row and I Broke Out n Got Cysts around my waist and abdomen .I Use Deodorant n I… read more
Well I contracted Anemia about 6 months ago and have had HS for 5 years.
