genital swelling with hs understanding lymphedema and hidradenitis suppurativa | myHSteam

Connect with others who understand.

sign up Log in
Resources
About myHSteam
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "genital swelling with hs understanding lymphedema"

reset
Does Anyone Else Deal With Swollen Lump Node In Groin? On Prednisone For 5 Months.
A myHSteam Member asked a question 💭
•
View reactions
Using Prid for Boils as Part of Your HS Home Care Routine Read Article...
A myHSteam Member

I hope you get some relief.

Does Anyone Have Experience With HS Causing Lymphodema? My Lymph Nodes Swell, Especially On Groin And Cheek And Neck.
A myHSteam Member asked a question 💭
A myHSteam Member

I just had a surgery to open up a section of HS on my scrotum it swelled up to the splice of a baseball overnight

Hi,Does Anyone Here Have Lipedema, Lymphedema N Or Dercums?
A myHSteam Member asked a question 💭
•
View reactions
A myHSteam Member

Recurring infections – Lymphedema can increase the risk of skin infections in the affected area
If you experience any of these symptoms, speak with your doctor. Early treatment can help manage the… read more

Did Anyone Develop HS After Covid Shot Or Have A Really Bad Flare?
A myHSteam Member asked a question 💭

I started having recurring pimple like boils in groin either right before or right after my 1st covid shot. I can’t remember the exact date because at first they were like pimples that popped didn’t hurt and went away quickly and I didn’t even notice I had one until it popped. But my last pimple like boil on pubic won’t heal completely and I got that one after the vaccines. I had never had a sore in my life that would not heal. I think I may or may not be having mild lymphedema. Well here is a… read more

•
View reactions
A myHSteam Member

Most interesting, thanks!!!

Been Misdiagnosed Saying It Was Fournier Gangrene Now Healing From Huge Wound Left By Surgeon That Didn't Have A Clue
A myHSteam Member asked a question 💭
•
View reactions
Can Certain Drugs Trigger HS To Develop? Read Article...
A myHSteam Member

Yes,I Was Misdiagnosed Even By The Dermatologist "So Called Dermatologist"Don't know Anything😡&The ER Doctors

What Does People Use For Pain I Know Mine Hurts Just Satting Down Pushing On It And Walking Around Is A Pain To
A myHSteam Member asked a question 💭
•
View reactions
A myHSteam Member

Hi, when my pain is really bad I use Paracetamols and antihistamines. Also, a large medical dressing if it is rubbing on my clothes.

Has Anyone Been Intimate With A New Partner After Being Diagnosed? If So, How Did You Approach The Topic Of Oral Sex?
A myHSteam Member asked a question 💭

I'm between stages 2 and 3 in my groin, side boob and armpits, thighs. I also have a lot of scar tissue in and around my labia but only on one side and I'm terrified and already embarrassed. He knows all about the condition and doesn't care...but I still feel like reading and photos are different than being in an intimate situation with me.

•
View reactions
A myHSteam Member

So touching what you said I have to remind myself that there is more to me than Hs but this disease has effected every part of my life I just shut the world Away

Does HS Cause Breast Discomfort
A myHSteam Member asked a question 💭
A myHSteam Member

Yes, some of my worst symptoms are happening on my right breast and under my right arm tons of swelling pain discomfort that causes nerve problems, but nothing is ever seen on top of the skin. It is… read more

Will HS Cause Leg Swelling?
A myHSteam Member asked a question 💭
A myHSteam Member

I have not had swelling in my leg but I get a flare that pops up reaally close to my lady bits, which not only causes my lymph node to swell, but my outter labia. Yeah, not fun. But I would keep your… read more

Fairly New To This Horrible Thing Called HS.
A myHSteam Member asked a question 💭

Hi all, I am new here and wanted to get opinions from people taking Doxycycline Hyclate 100mg daily for long term control of your HS. I am concerned about the long term use of it on my gut and all that it does & destroys within the stomach and elsewhere in the body. I was taking it daily for 6 months and it kept my flares to maybe 1 or 2 during that time. I stopped taking it about 4 or 5 months ago and all was good with HS flares. Now in the last 3 weeks or so I have had 2 flares so far.

Also… read more

•
View reactions
A myHSteam Member

Bill, I should add that I am in remission now because I am on the keto diet.....it's a tough one at first.....no sugar and no carbs (potatoes, pasta, breads and rices). Let me know if you want more… read more