Had several problems over years with what I was told was staphylococcus. I assumed that’s what this was. I was wrong and it’s been miserable.

The time between tests and professionals walking was 9 years for 3 examinations, and a photo session for the medical community magazine!
Thanks for noting !
This is getting worst.

Wondering if anyone in the DC/MD/VA area is aware of any HS Awareness Week Events next month? If not, let’s plan something! 😃

This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings

I have heard that inflammation from flare ups can cause fatigue but my flare ups can take weeks to heal and by the time one heals I have another. I just feel exhausted 24/7 despite having good blood test results and wondered if anyone else could relate?

I had a previous surgery under my arm. Which happens to be my first ever encounter with hs. But tbh I don't remember what I had done. Well anyway I'm going back in to have it looked at again. What is a surgery u have seen done a second go around. I think I had a deroofing? I'm trying to avoid having one surgery when it should have been something different the second time around if that makes sense. I have heard of instances where docs ( general surgeon) will do the simple less tedious surgery to… read more