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i haven't been able to work in over 9 months and i won't be able to work after my arms heal. i just beed help.
Yeah the mental health way is the fastest way.
Some people believe that HS is contagious skin disease or think it's some form of STD , so what information would you like to give to people about HS and about living with HS?
That it is due to uncleanness. I believe that is the reason it has been covered up for so long. People on here have had this thing for 40 years.
This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings
Hello Lynnette2, yes! I'm with you on this. It's so sad that I thought I was the only one for years. At 14 years old my own doctor told me she didn't know what it was. And why I had so many. It was… read more
Hi everyone my hs is really bad just now, does anyone have memory issues when they have flare ups?
Not yet. Look up Practice Update. It's free to join and there's a lot of information on that site.
Confidence!! You’re the one living with this condition. Your knowledge is the most accurate to be able to educate & relay information to others who tend to have an intolerable verbal backlash for what… read more
I didn't have any flares in Mexico, I ate sugar and carbs every day. I got home and tried to look up HS people in some Mexico cities and there don't seem to be any. I have always thought when I go to the Caribbean my HS is good, and I have always thought it was from the salt water? But now I'm wondering if it's the way they cook their food, I find it odd I can't find people from Mexico with HS?????? I got a flare the day after I returned, so back on the diet??? I am puzzled???
Hey Bonbon do you order this Keto from somewhere or you make it yourself?
Finding a doctor who understands Hidradenitis Suppurativa (HS) can be crucial for effective management of the condition. Here are some tips to help you find the right healthcare provider:
1. **Get… read more
Hi so I’ve just started my journey into finding out if I do indeed suffer from HS. I’ve been suffering for around 20 years but I’ve never looked into an any diagnosis because I thought that was just me. I’ve recently had a pilonidal cyst removed and I’m on a round of antibiotics as my stitches have become infected :(
My doctor has also prescribed me a low dose antibiotic to take for 3 months, a wash and nasal cream to be used for 5 days before they consider referring me to a dermatologist. Did… read more
This is actually what HS will look like in the very beginning 👇👇😁
I have been on claravis for five months im going into my six month now and after that im done. It helped a little with the HS but no prize. My Dermatologist wants to start me on COSENTYX after im finished with claravis. I want to know has anyone tried COSENTYX?
Hello! Brand new to this group of support! I have not been diagnosed with HS (yet) but I'm positive this is what I've suffered with for 10-15 years. I've looked for answers online here and there and finally learned about HS recently. All my symptoms seem to match. I felt such relief to know it's a real thing that so many live with! I remember at the beginning going to a doctor about the bumps in my inner thighs and he basically shrugged his shoulders and said it's probably just chaffing from… read more
Hi Lauram......The drag about HS is that most Dr's don't seem very well educated about HS....the same is for dermatologists. There are a few out there, but it's hit and miss whether you find one… read more
