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June 11
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A myHSteam Member

Iโ€™m ๐Ÿค” not sepsis but a personal family member died from it and that was my mom ๐Ÿ‘ฉ ๐Ÿ˜ข
Sepsis can cause organ failure ๐Ÿ˜ž and shut the body down itโ€™s a horrible thing to deal with and I donโ€™t know ๐Ÿคท much about it but if caught in the early stages it can be treated
I think ๐Ÿค” it gets into the blood ๐Ÿฉธ stream and slowly shuts down the organs in the blood ๐Ÿฉธ ๐Ÿ˜ข
HS is a inflammation condition and I noticed years ago that my blood ๐Ÿฉธ was very sticky but I was told by the professionals at the hospital ๐Ÿฅ that it was down to a condition that I did have called Polysithema and some how I managed to reverse it back to normal again
I donโ€™t know ๐Ÿคท how I did it but it happened so I canโ€™t really say much about that one โ˜๏ธ
But yes ๐Ÿ™Œ HS is a inflammation condition that over time ๐Ÿ•ฐ๏ธ gets closer and closer to the surface and it gets trapped under the skin causing boils and lumps
It does burst ๐Ÿ’ฅ and the smell ๐Ÿ‘ƒ is like a sewage kinda smell ๐Ÿ‘ƒ
Very nasty ๐Ÿคฎ stuff and it is actually very sticky stuff almost like a honey ๐Ÿฏ and it contains a very small amount of infection if tested out by the doctors etc from the hospital ๐Ÿฅ and is very hard to treat it but in my experience antibiotics donโ€™t really work even if you use them in long time ๐Ÿ•ฐ๏ธ use but this will totally depend upon how bad you have got it and if caught in the early stages
Keep the wound clean ๐Ÿงฝ and let it drain if you have to and you can use certain bandages like for example Urgoclean AG that contain TLC with silver inside the actual bandage it promotes healing โค๏ธโ€๐Ÿฉน and fights infection at the same time
A good cleaning ๐Ÿงฝ product is Hibiwash because itโ€™s actually scent free ๐Ÿ†“ and you can use octenillin that contains a anti biotic substance as used in hospital ๐Ÿฅ
I hope ๐Ÿคž you have had some success with everything going on and I wish you the very best of luck ๐Ÿคž with everything going forward from here
Take care and look after yourselves
Baz uk ambassador for the uk ๐Ÿ‡ฌ๐Ÿ‡ง
๐Ÿ˜๐Ÿ‘‹๐Ÿ‘‹

July 14
A myHSteam Member

Yes. I would lose blood with drainage because I have them under my arms, groin, inner thighs, and now buttocks. Started taking zinc and iron pills. See if he will drink green tea with turmeric, pinch of black pepper and organic honey. It has helped tremendously. He will be in a better mood. Sardines, mackerel, and/or salmon with turmeric and spinach ๐Ÿ˜‹

July 3
A myHSteam Member

Yes I had both in the beginning felt like I wasnโ€™t gonna make it through. Back and forth to the hospital I kept bleeding so bad pus everything. The doctors didnโ€™t know what to do at first, said I was the worse they ever seen before. I went through years of hell so many different doctors treatments and medications ended up getting on disability three years ago i stopped being anemic no more bleeding and as far as the sepsis they was able to knock is out with a powerful antibiotic i believe the name was vancomycin itโ€™s very powerful and it helped me. Iโ€™m not a doctor so I canโ€™t tell you this will help your son but it helped me get through that. Afterwards I still had to deal with my H.S. Prayers for you and your son๐Ÿ™๐Ÿฝ

June 28
A myHSteam Member

Actually my son is dealing with the same exact issues!

June 16
myHSteam

It's great that you're looking out for your son โ€” that's a lot to go through. Yes, anemia is actually quite common with HS. Research shows that people with HS are about six times more likely to develop anemia than the general population.

The two most common types seen with HS are:

- Iron-deficiency anemia (IDA) โ€” caused Show Full Answer

It's great that you're looking out for your son โ€” that's a lot to go through. Yes, anemia is actually quite common with HS. Research shows that people with HS are about six times more likely to develop anemia than the general population.

The two most common types seen with HS are:

- Iron-deficiency anemia (IDA) โ€” caused by not having enough iron to make red blood cells
- Anemia of chronic disease (ACD) โ€” triggered by the ongoing inflammation that HS causes in the body Some common symptoms of anemia to watch for include:

- Fatigue and weakness
- Dizziness or lightheadedness
- Shortness of breath
- Fast or irregular heartbeat
- Headaches
- Pale skin

Many myHSteam members have shared experiences with fatigue alongside their HS. One myHSteam member said, "Fatigue is my biggest struggle, still." Another shared that they need iron infusions every other week due to severe anemia. The good news is that treating the HS itself โ€” reducing inflammation through biologics or antibiotics โ€” can help the body produce more red blood cells. Iron supplements or dietary changes may also help, but always check with his doctor before starting anything new.

It would be worth bringing up anemia screening with his care team, especially given his recent health history.

June 11

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A myHSteam Member asked a question ๐Ÿ’ญ
Topeka, KS