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A myHSteam Member asked a question 💭
Topeka, KS
May 20
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A myHSteam Member

I had noticed some hip pain over the last few years. Not bad, but annoying at times. In January this year I had a HS flare up for the first time in 35 years. It took my hip pain to a 10. Waking every night 3-4 times with immense hip pain. After having the lesion opened I finally healed mid March. Still the hip pain continued at a lower level… maybe a 4. I went to an Orthopedic surgeon and he didn’t seem concerned. He knew nothing of HS so of course he saw no connection. I got a steroid shot and finally pain is down. I am on a fact finding journey to understand HS and see correlation. Thank you for answering my question.

May 24
A myHSteam Member

Interesting, my hip joins have really been bothersome 😫

May 23
myHSteam

Hip pain with HS is something others have experienced, and there's actually a recognized connection worth knowing about.

HS is linked to a condition called axial spondyloarthritis (axSpA), which affects the joints connecting the pelvis to the lower spine. Both conditions involve an overactive immune system causing excess Show Full Answer

Hip pain with HS is something others have experienced, and there's actually a recognized connection worth knowing about.

HS is linked to a condition called axial spondyloarthritis (axSpA), which affects the joints connecting the pelvis to the lower spine. Both conditions involve an overactive immune system causing excess inflammation, and people with HS are more likely to develop this than those without it. Symptoms to watch for include:

- Pain in the lower back, hips, or buttocks
- Swelling, warmth, or discoloration in nearby joints
- Morning joint stiffness
- Night pain that disrupts sleep
- Loss of appetite

If any of these sound familiar, it's worth bringing up with a doctor. They may refer to a rheumatologist who can properly evaluate and help manage the joint pain alongside HS treatment.

May 20
A myHSteam Member

Yes! I was having a bit hip pain. I didn't think much of it, applied heat and at this time was working remotely due to severe HS flare ups and pain. About 3 mo the water, woke up and could barely put my foot down to walk. I went to ER, xray was taken and found out sever arthritis and am now bone on bone. I lost insurance for a few months. I gained insurance went to Dr and was advised to take steroid shots! I'm like how did I get here so fast!? Apparently, with HS, rheumatoid arthritis, and joint inflammation is associated with this. My doctor even said, wed need to have a conversation about hip replacement. All this from HS, ehich caused limited mobility, weight gain, that kead to hip pain. I advise anyone to not take aches and pains as something to "just deal with". Get it checked out right away. I also advise look up physical therapy moves for hip and lower back pain. I was a side sleeper for many years and I didn't always place a pillow between my knees when sleeping. This alone makes a difference! Drink gren tea with turmeric, pinch of black salt, and real honey for inflammation! Thank me later. God bless and stay hopeful.

July 3

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