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I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
I'm not
I am interested in knowing if any other women also have HS, PCOS/infertility, and/or cystic fibroid breast tissue? I’m interested in the possible hormonal aspect of HS.
I need to go get tested for this because I do get a lot of like when I have an outbreak I tend to get a lot more hair than that causes HS out break I think I need an actual test with this with my auto… read more
Had several problems over years with what I was told was staphylococcus. I assumed that’s what this was. I was wrong and it’s been miserable.
Many guys here.
I was in the ICU a month ago with pneumonia. Was on very strong antibiotics. I have not broken out since. I have a severe case. Usually I have at least 2 lesions at any given time.
Hidradenitis suppurativa (HS) is believed to be caused by a combination of genetic and environmental factors. However, the exact cause of HS is not fully understood. Here are some key points:
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I use hibiclens and other natural soaps that are hydrating to combat the dryness from hibiclens.
Hi all, I am new here and wanted to get opinions from people taking Doxycycline Hyclate 100mg daily for long term control of your HS. I am concerned about the long term use of it on my gut and all that it does & destroys within the stomach and elsewhere in the body. I was taking it daily for 6 months and it kept my flares to maybe 1 or 2 during that time. I stopped taking it about 4 or 5 months ago and all was good with HS flares. Now in the last 3 weeks or so I have had 2 flares so far.
Also… read more
Bill, I should add that I am in remission now because I am on the keto diet.....it's a tough one at first.....no sugar and no carbs (potatoes, pasta, breads and rices). Let me know if you want more… read more
I’m doing well for a cool day. Thanks for asking and how are you?
HS is still a new diagnosis to me and my specialist is not give me many answers to my questions. I typically get the responses “there’s no clinical evidence or studies”, “I don’t know, I just go off of what the patients tell me”.
So I have been on minocycline for 3 months and has not done much for me. I’ve had 1 de roofing and another set for April. I have always lived a healthy lifestyle but am working on making changes. I am using resorcinol cream but have no idea what it’s supposed to do… read more
You will hear this often, but there is no single treatment that works for everyone. Because, it’s true. HS is poorly understood and understudied. I believe the root cause for me is hormonal. My derm… read more
My dermatologist suggested this to treat HS. Has anyone went this route?
I'm on it for liver issues and it has never had any effect on my HS
What injections is everyone on? What works for you? How long did it take to work?
I’m in stage 2 and currently 3 months into simlandi and it is working but not fully. Just curious what others use.my doctor recommended consentyx as our next approach if needed, does anyone have experience with it? Did you find you got sick easier, contract a serous illness?
I'm on cosentyx. I'm still waiting to see if it helps me
