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A myHSteam Member asked a question 💭
South Orange, NJ

My dermatologist suggested this to treat HS. Has anyone went this route?

May 31, 2023
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A myHSteam Member

YES! It's been life-changing for me. My derm initially told me to take 50mg/day for the first month and then up the dose to 100mg/day, but the 50mg practically cured me of all of my HS symptoms/lesions, so she told me to stick to 50mg/day. (Please note these are not typical results and that even my term -- who's an HS specialist -- was surprised at well and how quickly I responded to only 50mg/day of spiro.) I've been on 50mg/day for just over two years and it's worked out well.

I have since experienced a couple minor recurrences/breakouts (usually during the week leading up to my period), but nothing as bad as what I experienced prior to going on the spiro. My derm said I could go up to 100mg/day to try to nip it in the bud completely, but I appreciate that the drug's side effects are so minimal on my low dose. I may change my mind about that, though, if I start breaking out again.

June 26, 2025
A myHSteam Member

I'm on it for liver issues and it has never had any effect on my HS

April 20, 2024
A myHSteam Member

Spironolactone has made a huge positive difference for me. I’m at about 3 months now and I feel very close to remission. Since starting Spironolactone, I did have a couple of really small flares with very little drainage. Studies have shown success for women after 3 months on the drug.

February 2, 2024
A myHSteam Member

Hello! I'm currently on Spironolactone for HS. I don't know how helpful my case would be for you though, because I've been on Humira for a few years, and just added the Spironolactone in the last year.

It's hard to tell where one treatment ends and the other begins, so I can't tell if it's really working or not, but I recently went up on the dosage... I don't think I was on a high enough dose.

I've had HS for 10+ years now, and the Humira was the only thing that showed a major improvement at all. Now that has leveled off and that's why I'm trying the Spironolactone.

Sorry if that's not very helpful, but let me know if you have any specific questions about the drug!

Best of luck,
Brigette

June 2, 2023

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