5 ways to get involved with hs awareness and hidradenitis suppurativa | myHSteam

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My Name Is Brian So Obviously I’m A Male. I Have Noticed That The Vast Majority Of The Members Are Female. How Did I End Up With It?
A myHSteam Member asked a question 💭

Had several problems over years with what I was told was staphylococcus. I assumed that’s what this was. I was wrong and it’s been miserable.

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A myHSteam Member

Many guys here.

Let's All Come Together On How We Can Have A Major Campain Against HS Nation Wide
A myHSteam Member asked a question 💭

This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings

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A myHSteam Member

Sign me up friend

If U Have Stage 3 With Scarring And Opening For A Month Have A Plastic Surgeon Remove The Tunnels And Graft Skin?
A myHSteam Member asked a question 💭
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Hidradenitis Suppurativa Stage 3: Pictures and Treatment Read Article...
A myHSteam Member

I’ve had that done 2 years ago and am about to get another one.😡

How Do You Find A Doctor That Can Help You With This?
A myHSteam Member asked a question 💭
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A myHSteam Member

Finding a doctor who understands Hidradenitis Suppurativa (HS) can be crucial for effective management of the condition. Here are some tips to help you find the right healthcare provider:

1. **Get… read more

The Skin Removal Is Too Expensive? And Way The Time To Diagnose The Disease Is So Long?
A myHSteam Member asked a question 💭

The time between tests and professionals walking was 9 years for 3 examinations, and a photo session for the medical community magazine!
Thanks for noting !
This is getting worst.

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Are You Afraid To Say No? Read Article...
A myHSteam Member

Omg do you have a healed photo? Hugs

HS Awareness Week 2023!
A myHSteam Member asked a question 💭

Wondering if anyone in the DC/MD/VA area is aware of any HS Awareness Week Events next month? If not, let’s plan something! 😃

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A myHSteam Member

I’m in Nebraska- that is so wonderful!
Yes awareness!🤩

What Do You Wish Others Understood About Living With HS?
A myHSteam Member asked a question 💭
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A myHSteam Member

Great attitude MaryKay

Has Anyone Been Placed On Cosentyx Injections? FDA Just Approved For HS And My Dr. Is Switching Me Off Humira For It.
A myHSteam Member asked a question 💭
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A myHSteam Member

Yes, Cosentyx (secukinumab) is indeed an FDA-approved treatment for adults with moderate to severe hidradenitis suppurativa (HS). It is administered as a subcutaneous injection every four weeks, and… read more

Does Anyone Feel Tired All The Time?
A myHSteam Member asked a question 💭

I have heard that inflammation from flare ups can cause fatigue but my flare ups can take weeks to heal and by the time one heals I have another. I just feel exhausted 24/7 despite having good blood test results and wondered if anyone else could relate?

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A myHSteam Member

All the time, and I use ice packs too, life savers.

Has Anyone Had Significant Bleeding From Armpit?
A myHSteam Member asked a question 💭
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A myHSteam Member

Thank you Baz, yes I too have it in my armpits. I haven't had surgery.