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A myHSteam Member asked a question 💭
Jackson, MI
March 28, 2024
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When To Go to the Hospital for Hidradenitis Suppurativa Read Article...

Answer Summary

Members confirmed that hidradenitis suppurativa in the vaginal and labia area is common, with many describing it as one of the most painful... Read more

Members confirmed that hidradenitis suppurativa in the vaginal and labia area is common, with many describing it as one of the most painful locations, often extending to the groin, anal area, and pubic region. Several members shared practical management strategies, including hot Epsom salt baths, witch hazel wipes after using the bathroom to reduce bacteria, and keeping the area as clean and dry as possible despite the challenge of constant moisture. A recurring theme was the physical and emotional toll of living with painful, recurring lesions in such a sensitive area, with members emphasizing the importance of consulting a dermatologist to rule out similar conditions and finding individualized relief strategies.

A myHSteam Member

YES. But luckily not that frequently and they tend to heal and stop. However, I recall reading once about a different condition that similar to HS but specific to the vulva. I wish I could remember the name, but it's certainly worth talking to a dermatologist about.

April 11, 2024
A myHSteam Member

I am in pain in this moment!
Is on my left side in my vaginal area .
So hard to sit and walk.
Is the 3rd day and the pus don't stop!

April 13, 2024
A myHSteam Member

I have this area too. And anal and on the public area,face and back of the neck.The groin and labia has to be the worst. I am at stage 3 now. I find real hot baths with Epsom salt helps..it is hard to put any kind of bandage in this area. I put witch hazel in baby wipes and keep the area clean and do this after every time I go to the washroom. It helps keep the bacteria down too. The smell is the hardest and I have found no way to get ride of that. As a woman it is harder because the area is always moist.

April 3, 2024
A myHSteam Member

Currently have my labia on the left side, the top of my vaginal area (looks like hair bumps) and all the to my anal area. Pretty much whole vaginal area. Hurts like heck!

April 2, 2024
A myHSteam Member

I think the condition specific to the Vulval area is called 'lymphedoema'.

April 14, 2024

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