survey most myhsteam members say pain significantly impacts quality of life and hidradenitis suppurativa | myHSteam
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Does Anyone Have Any Problems With A Lesion On The Labia?
A myHSteam Member asked a question 💭

I find that these ones are the worstttttt. I take baths, I put on ointment, I shower twice a day. I don’t know how to keep them at bay.

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A myHSteam Member

I have! And on the vagina. My husband was always very good about my H.S. flair ups. He never wanted to cause me anymore pain
These are embarrassing and really take a toll on your intimacy. We were… read more

Did Anyone Have Surgery
A myHSteam Member asked a question 💭

Hello everyone I had to have skin flap surgery under both arms it hurt like hell

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A myHSteam Member

I’ve had an incision and drain under general anaesthetic on right axilla, but still having issues with that for the past seven months and never healed, so now waiting to hear from a plastic surgeon… read more

I Wear Tight Yoga Pants With New Flairs In The Groin Area I Should Prob Wear Looser Pants While Walking The Dog.What Are Your Go To Pants?
A myHSteam Member asked a question 💭
A myHSteam Member

It's a good idea to opt for looser-fitting pants if you're experiencing new flares in the groin area, especially when engaging in activities like walking your dog. Many people with hidradenitis… read more

Help...Tunnel/ Hole
A myHSteam Member asked a question 💭

I had a bad flare a while back and it ended up bursting then leaking for a few days, I am not left with a hole that doesn't seem to be healing.

I have been using NanoSalv wound treatment in it which has helped close tunnels before but does not seem to be doing much on this. Can anyone give me suggestions on how to get it to close?

A myHSteam Member

It sounds like you're referring to tunnels associated with hidradenitis suppurativa (HS). These tunnels, also known as sinus tracts, are hollow connections that typically form between infected HS… read more

Is There Anyone Else T 2 Diabetic On Shots Worried About Skin Infections Getting Out Of Control? The Shot Lower My Immune System. Concerned
A myHSteam Member asked a question 💭

I'm on trulicity and it says I can get infections that can cause hospitalization if not treated. I'm overly concerned that a lesion that has broken will cause health issues. Any one else feeling this way and what should I do?

A myHSteam Member

It's understandable to be concerned about skin infections, especially when managing both type 2 diabetes and HS. Here are a few points to consider:

1. Insulin and Immunity: Insulin injections for… read more

What Do You Guys Do About The Sites That Open And Become Ulcers? I’ve Been Wound Caring For Them. Wound Wash, Bandage Etc
A myHSteam Member asked a question 💭

They seem to take forever to heal though especially if the infection was real deep.

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A myHSteam Member

Managing open wounds from hidradenitis suppurativa (HS) can indeed be challenging. Here are some steps you can follow to care for them:

1. Clean the Wound: Gently clean the area with a saline… read more

Help With Hs As A Type 1 Diabetic
A myHSteam Member asked a question 💭

My mother use to call these fat bumps, boy was she wrong. After having back surgery, I discovered that my pancreas was nicked and I became a type 1 diabetic. There are times when my blood sugar drops and I will be sweating, I have woken up numerous times overheated and sweaty. How do I get help with this? Any suggestions? I was in the hospital in DKA and saw a commercial for HS and realized that that was what I had been dealing with. When I brought it up to my doctor, he basically said ok… read more

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A myHSteam Member

Managing both hidradenitis suppurativa (HS) and type 1 diabetes can be challenging, but here are some strategies that might help:

1. Medication Management: Since insulin is essential for type 1… read more

I Had An I&d For A Labial Abscess In March But It Feels Like One Is Coming Back
A myHSteam Member asked a question 💭
A myHSteam Member

It's not uncommon for abscesses to recur in hidradenitis suppurativa (HS), especially if the underlying condition isn't fully managed. Here are a few steps you might consider:

1. Follow-up with Your… read more

I Have Dry Patches On My Cheeks Is There Something To Help Put Some Moisture Back In Them?
A myHSteam Member asked a question 💭
A myHSteam Member

For dry patches on your cheeks, especially if you're dealing with hidradenitis suppurativa (HS), it's important to use gentle, moisturizing products. Here are a few tips that might help:

- **Cool… read more

Any Have Problems With Candida Or Blood Sugar?
A myHSteam Member asked a question 💭

Im trying to figure out "what" is causing my mast cells to be triggered & keeping this inflammatory nightmare going. I dont smoke, not obese but i DO have chronic pancreatitis. I read that insulin resistancy can play into HS. Ive also had a problem with candida which keeps mast cells inflaming everything. So im curious 'if' my long time gimpy pancreas has caused a blood sugar problem thats causing candida and HS?

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A myHSteam Member

Thanks. I think the blood sugar is causing the candida. Which in turn keeps my mast cells triggered and causing constant inflammation. I want sure if anybody on here has candida issues as well?