I've been to my PCP and a couple different dermatologist and still not getting better
I'm hoping that you'll find a provider that understands HS. I know some of the advocacy groups like Hope for HS have developed medical materials to teach Dr's and other providers about HS. Even all dermatologists don't know. I was diagnosed through a lab test. My provider took a sample of my skin because it was "falling apart" where I had a flare and she didn't know why. I had to change dematologists to one that understood HS and knew how to treat my condition.
If possible get a skin graft. I’ve had 2 and haven’t flared since. Leaves scars, but I’d rather that then the pain.
That sucks.
Telehealth or telephone nurse lines are options.
Are you going to a primary doctor (yours) ? If so try a specialist. I feel as though they may have more answers and can be more helpful.