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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHSteam Member asked a question 💭
Ann Arbor, MI
April 9
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A myHSteam Member

So this is anecdotal, but in another HS group I'm in a fair amount of people have tried accutane, usually because their insurance required it before approving a biologic. It didn't seem to work for most of them, and for those it did work for it was pretty temporary. I've never been on it personally, but I haven't heard loads of great stuff about it for HS. Seems like more people have success with biologics.

April 10
A myHSteam Member

Do not take this Drug , there is a way to help you stabilize H.S.

April 9
myHSteam

Can Accutane (isotretinoin) help treat hidradenitis suppurativa?

Accutane (isotretinoin) has shown some benefit for people with HS, particularly those whose condition hasn't responded well to other treatments. It's typically taken for about six months and has proved helpful for some individuals.

However, it's important to Show Full Answer

Can Accutane (isotretinoin) help treat hidradenitis suppurativa?

Accutane (isotretinoin) has shown some benefit for people with HS, particularly those whose condition hasn't responded well to other treatments. It's typically taken for about six months and has proved helpful for some individuals.

However, it's important to know that isotretinoin is not FDA-approved specifically for HS treatment. Some dermatologists may prescribe it off-label on a case-by-case basis.

Important considerations:

- It can cause side effects including dry skin, back pain, and depression
- It affects liver enzymes and blood lipid levels
- It can cause severe birth defects if taken during pregnancy, so people who can become pregnant need close monitoring
- Results vary - it doesn't work for everyone

Since isotretinoin is most commonly used for severe nodulocystic acne, your dermatologist will need to evaluate whether it's the right option for your specific HS situation. Make sure to discuss all potential side effects and risks with your doctor before starting treatment.

April 9

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