I've missed some work here and there. I work at a desk all day and my inner thigh flares are terrible at times. Wearing long pants doesn't help either. Wonder if the department that grants this knows what this condition is and approves my intermittent leave. Anyone had any success with FMLA?
Yes, requesting FMLA coverage for HS is absolutely appropriate. The Family Medical Leave Act provides up to 12 weeks of protected leave over a 12-month period, which can be taken intermittently. This means you can take time off as needed for flares while keeping your job protected and maintaining your health benefits. The Show Full Answer
I have FMLA for HS. Every year my doctor fills out the required info and I receive the approval. It’s easy, and worth it!
My inner thigh is where my flares always are, and I have a desk job like you. Man, the pain of sitting with a flare right before it breaks open and relieves the pressure brings tears to my eyes sometimes. I feel your pain.
I’ve found that holding an abdominal pad (just a large, thick gauze pad, but soft and super absorbent) over the flare, then using pre wrap (a soft, non irritating material that is rolled up like an ace bandage) to firmly but LIGHTLY (don’t cut of circulation) wrap my entire thigh multiple times (from just above the knee all the way to my butt cheek) to keep the pad in place. Put a few pieces of sports tape on to keep it in place.
Finally, I put on a thigh compression sleeve over everything. This keeps the pad and wrap in place, while also creating a nice skin break to avoid chaffing. I have a dozen thigh compression sleeves and I wear them almost all the time (one on each leg). It’s really helped reduce my flares.
I also use this same process once it breaks open to keep the pad in place to absorb discharge.