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A myHSteam Member asked a question 💭
Dallas, TX

Just wanted to say hello and I love you to all of you my HS family I have been taking a ass kicking here lately but as always I'll get through it I'm sure I hope y'all are doing well and pain free ( love y'all Eddie from Texas)

October 21, 2024
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Answer Summary

Members rallied around Eddie's check-in with warm encouragement and prayers, while also sharing experiences with managing hidradenitis... Read more

Members rallied around Eddie's check-in with warm encouragement and prayers, while also sharing experiences with managing hidradenitis suppurativa through diet modifications. Several members described finding complete remission by eliminating carbs through keto or carnivore diets, while others shared success with Mediterranean diets focused on eliminating saturated fats, increasing daily movement, and avoiding restaurant meals high in calories and inflammatory oils. A recurring theme was the connection between metabolic health conditions like fatty liver disease and diabetes with HS severity, with members emphasizing that while dietary changes require significant sacrifice, the relief from symptoms makes it worthwhile.

A myHSteam Member

I can eat anything now even carbs since eliminating saturated fat and doing Mediterranean diet with olive oil. I eat low fat kefir, low fat yogurt and low fat cheese a few times a day, bread, crackers. No HS for two years now. I had to exercise a lot, lower my calories, lose weights. Basically had to get rid of diabetes with a new lifestyle. No HS at all! Not even a pimple. I walk 5,000 to 10,000 steps a day and eat 1,000 to 1,300 calories a day. No restaurant food or processed food. I’m still careful with carbs.

October 23, 2024
A myHSteam Member

@A myHSteam Member. @A myHSteam Member. Other autoimmune diseases can do thi to the mouth and gums. Sjogren’s Syndrome wil do this and Ankylosing Spondylitis and others. Do you have dry mouth, dry eyes or eye inflammation, dry skin? Not enough saliva causes this. Vitamin deficiencies. Perhaps certain medicines.

October 26, 2024
A myHSteam Member

Dianne.....never heard of that, but HS has done all kinds of weird that I've read about on these pages! Hugs, I hope you can figure that out, autoimmune diseases are something I'm not very familiar with, although seems somehow connected to HS??

October 25, 2024
A myHSteam Member

@A myHSteam Member. I only eat out once a month and usually at Mediterranean restaurant. I got a high quality cooler I keep in my car to pack healthy meals with frozen bottles of water in a trash bag on top of the zip lock bags or containers of food. I pack cooked chicken breast King Oscar lemon or other flavored salmon or sardines or leftovers, salad. One high calorie restaurant meal wrecks calorie count intake for the whole week. A single restaurant meal usually has over 1,000 calories. Usually they have 1,500 or so calories which is the whole day allowance so if eat out that’s 3,000 calories in a day. If I crave a burger real bad I half a double meat one with husband to lessen the bun and eat half a small fry. Even that is once or twice a month because of the bad fats and being processed.So if you eat out 4 times a week you are over consuming calories with high salt and bad types of fats and oils that cause fatty liver disease, diabetes which can cause HS. Mayonnaise is bad. Take a cooler for food or take cans of food and a can opener that are salt free or low salt I take canned green beans and salad. I had liver scars I reversed so it was do it or die. So pretend you gonna die and just stop eating out. Many of my friends dying early. Previous generations did not eat out like we do. Lots of people dying in 60’s instead of 80’s. I feel for ya cuz husband eats out in front of me. But many times if it’s fast food I sit in the car or steal a bite or two. Because fast food is so high fat it can still have 700 calories eating only half. I try to eat my packed lunch before he eats so I won’t eat the bad stuff.Fatty liver is progressive and is really the cause of his type 2 diabetes. Diabetes contributes to HS in a severe way.

October 24, 2024
A myHSteam Member

Every comment and suggestion is accurate- will continue to pray for you!!!

October 31, 2024

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