Thousands of members of myHSteam connect with one another and read each other's stories to gain perspective and validation about living with hidradenitis suppurativa (HS). Another way to discover how to live better with HS is through books written by people who have this condition. We combed through member book recommendations and collected a list of the most popular.
1. The Hidden Plague: A Holistic Field Guide to Managing Hidradenitis Suppurativa & Other Skin and Autoimmune Conditions by Tara Grant
This bestselling book has served as a bible and encyclopedia for people living with the little-spoken about condition that is HS. Written by a 20-year HS sufferer, this book is a combination of personal experience and scientific research.
2. HS Warrior: One Woman's Ongoing Battle with Hidradenitis Suppurativa by Pen
Primarily a condition that affects African-American women, HS is not a research priority and has led millions to live in silence. This call-to-action empathizes with the silent suffering people with HS experience every day.
3. I Will Not Hide by Ronald J. Bercume
A collection of personal stories, written by and for patients with HS. It is a great source of support and information from those living with the condition.
4. Hidradenitis Suppurativa: Your Questions - Expert Answers Alexa Boer Kimball and Kendra Gail Bergstrom
An essential read for both patients and supporters, this expert guide is the information you need to live with HS.
Check out some book recommendations and favorites from Members of myHSteam:
"Purchased the book "The Hidden Plague." Haven't read much yet, but is interesting and worth the read so far."
"I've been doing research for months to try to help. Anyone who has no clinical advice, please share."
"I’ve done a TON of research and read a lot of clinical trial and research papers that suggest sex hormones cause the flare-ups."
What book about HS do wish you knew about when you were first diagnosed?
Share in the comments below!