Beginner's Mind - Not Knowing It All When Living With Hidradenitis Suppurativa

Posted on July 03, 2019

"The complexities of this condition make me want to read everyone's comments as I learn more and more. The truth is I know enough not to realize how very little I know."
- Member of myHSteam

Living with HS can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know. Have you heard the saying, "People don't get it until they get it?"
That is so true about HS.

"The more I learn about HS, the more I realize that it's not my fault."
-Member of myHSteam

An HS diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on myHSteam gain perspective from other members' experiences to become better informed about what it's really like to live with HS.

Here are recent conversations from members of myHSteam:

"I just discovered this site yesterday and I am glad to have a place where I am understood and not alone. So shout out to everyone brave soul here. You guys are awesome and never alone."

"I just learned that what I've been secretly dealing with for years actually had a name and to my relief isn't something I caused by anything in my control!"

"When I saw this group I was in shock! I had no idea this horrible thing I have is shared by so many others. I've spent ions thinking I was just cursed... And gross or something. This group just brought me so much peace."

What negative assumptions have you let go of about HS?
Tell us about it in the comments below or directly on

A myHSteam Member said:

William coukd be your thyroid

posted about 1 month ago


myHSteam My hidradenitis suppurativa Team

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