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Beginner’s Mind — Not Knowing It All When Living With Hidradenitis Suppurativa

Posted on July 03, 2019



"The complexities of this condition make me want to read everyone's comments as I learn more and more. The truth is I know enough not to realize how very little I know."
- Member of myHSteam

Living with HS can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know. Have you heard the saying, "People don't get it until they get it?"
That is so true about HS.

"The more I learn about HS, the more I realize that it's not my fault."
-Member of myHSteam

An HS diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on myHSteam gain perspective from other members' experiences to become better informed about what it's really like to live with HS.

Here are recent conversations from members of myHSteam:


What negative assumptions have you let go of about HS?
Tell us about it in the comments below or directly on myHSteam.com.

All updates must be accompanied by text or a picture.

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myHSteam My hidradenitis suppurativa Team

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