Connect with others who understand.

sign up log in
About myHSteam

Beginner's Mind - Not Knowing It All When Living With Hidradenitis Suppurativa

Posted on July 03, 2019



"The complexities of this condition make me want to read everyone's comments as I learn more and more. The truth is I know enough not to realize how very little I know."
- Member of myHSteam

Living with HS can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know. Have you heard the saying, "People don't get it until they get it?"
That is so true about HS.

"The more I learn about HS, the more I realize that it's not my fault."
-Member of myHSteam

An HS diagnosis forces us to drop our negative assumptions about life with a chronic condition. Members on myHSteam gain perspective from other members' experiences to become better informed about what it's really like to live with HS.

Here are recent conversations from members of myHSteam:


What negative assumptions have you let go of about HS?
Tell us about it in the comments below or directly on myHSteam.com.

A myHSteam Member said:

Like others have said, I thought, and still think somewhat, that this is something I caused or could have prevented or something. Extremely frustrated,… read more

posted 13 days ago

hug (2)

Recent articles

Antibiotics for hs
Article written by Max Mugambi Medically reviewed by Dr. Alexa KimballHidradenitis suppurativa...

Antibiotics for HS: What You Need to Know

Article written by Max Mugambi Medically reviewed by Dr. Alexa KimballHidradenitis suppurativa...
Mht ad stages thumb
Article written by Alison Channon Medically reviewed by Dr. Kevin BermanAfter diagnosing...

Hidradenitis Suppurativa (HS) Stages

Article written by Alison Channon Medically reviewed by Dr. Kevin BermanAfter diagnosing...
Mht ad thepathtodiagnosis2 thumb
Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...

Hidradenitis Suppurativa (HS) – The Path to Diagnosis

Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...
Mht ad cause thumb
Article written by Kelly Crumrin Medically reviewed by Dr. Kevin BermanThe cause of hidradenitis...

What Causes Hidradenitis Suppurativa (HS)?

Article written by Kelly Crumrin Medically reviewed by Dr. Kevin BermanThe cause of hidradenitis...
Mht ad overview thumb
Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...

Hidradenitis Suppurativa (HS) – An Overview

Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...
Mht ad treatments squareformat
Article written by Kelly Crumrin Medically reviewed by Dr. Kevin BermanThere are several...

Treatments for Hidradenitis Suppurativa (HS)

Article written by Kelly Crumrin Medically reviewed by Dr. Kevin BermanThere are several...
Mht ad symptoms thumb
Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...

Symptoms of Hidradenitis Suppurativa (HS)

Article written by Alison Channon Medically reviewed by Dr. Kevin BermanHidradenitis suppurativa...
Can hs be cured
Article written by Daniel Bukszpan Hidradenitis suppurativa (HS) is a chronic skin disease that...

Can Hidradenitis Suppurativa Be Cured? What You Need To Know

Article written by Daniel Bukszpan Hidradenitis suppurativa (HS) is a chronic skin disease that...
Is hs autoimmune
Article written by Jessica Wolpert Hidradenitis suppurativa (HS), also known as acne inversa, is...

Is HS an Autoimmune Condition?

Article written by Jessica Wolpert Hidradenitis suppurativa (HS), also known as acne inversa, is...
Disability benefits for hs
Article written by Annie Keller When people with hidradenitis suppurativa (HS) can no longer...

Disability Benefits for HS: What You Need To Know

Article written by Annie Keller When people with hidradenitis suppurativa (HS) can no longer...
myHSteam My hidradenitis suppurativa Team

Two Ways to Get Started with myHSteam

Become a Member

Connect with others who are living with hidradenitis suppurativa. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about hidradenitis suppurativa sent to your inbox.

Not now, thanks

Privacy policy
myHSteam My hidradenitis suppurativa Team

Thank you for signing up.

close