clothing for hidradenitis suppurativa what helps with comfort and confidence and hidradenitis suppurativa | myHSteam

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How Do One Be Intimate Without Worrying About The Odor Or Someone Seeing The Infected Sight?
A myHSteam Member asked a question 💭
A myHSteam Member

It's very hard. I just tell and send that person a pic and let a person know it's not contagious.

Looking For Products That Help With Dressing Under Harm Hidradenitis Suppurativa
A myHSteam Member asked a question 💭
A myHSteam Member

Non adherent pads are a must!

I'm Wondering If Any Females Have Noticed That There HS Flairs Up Around That Time Of The Month?
A myHSteam Member asked a question 💭
A myHSteam Member

Yes!! My derm even has me on medication to try help this along with antibiotics and I’m currently on flare number three in just over a month. I seem to start from ovulation to period. And get about 7… read more

What Do You Guys Do About The Sites That Open And Become Ulcers? I’ve Been Wound Caring For Them. Wound Wash, Bandage Etc
A myHSteam Member asked a question 💭

They seem to take forever to heal though especially if the infection was real deep.

A myHSteam Member

Managing open wounds from hidradenitis suppurativa (HS) can indeed be challenging. Here are some steps you can follow to care for them:

1. Clean the Wound: Gently clean the area with a saline… read more

Help With Hs As A Type 1 Diabetic
A myHSteam Member asked a question 💭

My mother use to call these fat bumps, boy was she wrong. After having back surgery, I discovered that my pancreas was nicked and I became a type 1 diabetic. There are times when my blood sugar drops and I will be sweating, I have woken up numerous times overheated and sweaty. How do I get help with this? Any suggestions? I was in the hospital in DKA and saw a commercial for HS and realized that that was what I had been dealing with. When I brought it up to my doctor, he basically said ok… read more

A myHSteam Member

Managing both hidradenitis suppurativa (HS) and type 1 diabetes can be challenging, but here are some strategies that might help:

1. Medication Management: Since insulin is essential for type 1… read more

Scarring
A myHSteam Member asked a question 💭

Hello everyone. I am new on here. Obviously very annoyed and discouraged about my HS and would love any tips and recommendations! Ordering the “HS magic ointment” I have seen posted on here. Anyone have good tips or remedies for the scarring?

A myHSteam Member

😁 👇 i am very proud of my scars it’s 🤔 baz 3 - HS Devil 0 😈🔫 but here is one of them 👇👇😁💪💪

So This Is Not Really A Question But It Helps Me I Get A Little Bottle Of Tea Tree Oil I Use The One From Trader Joe's It Helps
A myHSteam Member asked a question 💭
A myHSteam Member

I wouldn’t use it in an open wound. Something that’s good to help with the healing process are Xeroform Petrolatum Gauze, I’ve used them for a few years. It will assist in closing of the wound. Use an… read more

How Do You Find A Doctor That Can Help You With This?
A myHSteam Member asked a question 💭
A myHSteam Member

Finding a doctor who understands Hidradenitis Suppurativa (HS) can be crucial for effective management of the condition. Here are some tips to help you find the right healthcare provider:

1. **Get… read more

Why Does My Skin Literally Feel Like It's Letting Out Moisture? Its Strange Like It's Not Sweat.
A myHSteam Member asked a question 💭
A myHSteam Member

I have the ‘seepage’ sensation and smell in my groin area with no visible open wounds. I think it’s it’s the stuff under the skin that never seems to go away, no matter the antibiotics, hibiclense or… read more

Will Cleaning Products That Say Kills 99.9% Of Germs And Viruses Kill What Causes Hidradenitis Supporativa?
A myHSteam Member asked a question 💭
A myHSteam Member

It's a Inflammation disease/ Autoimmune disease. The body fights itself. It's causes are so many things, food, stress, hair follicles that get infected, etc. They is no cure! If not treated early it… read more