Stelara and hidradenitis suppurativa | myHSteam

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All My Groin Sufferers... How Do You Keep On Living? I Want To Die. I Think About Suicide EVERY SECOND OF EVERY DAY 😭
A myHSteam Member asked a question 💭

I have had hs for 7 years (diagnosed 6 years ago but refuse to see another doctor or spread my legs to one) because I'm soooo fucking embarrassed I don't even want a doctor to look at me. I know after this many years they will judge me
My whole groin (outer vagina) looks like a rotting steak with maggot holes everywhere. I smell like rotting meat. My response to all of this is doing EVERYTHING and anything that makes it worse because I'm depressed to the point of unaliving myself. I… read more

A myHSteam Member

I have had HS for 50 years. It is a disease. Yes it is embarrassing but you need to get on a good anti-depressant and there are medications that can help. Find a Derm who actually knows what they… read more

Has Anyone Done The Injections And If So Does It Work? And Is It Painful To Get? And How Often Do You Have To Get The Injections?
A myHSteam Member asked a question 💭
A myHSteam Member

Thank you

Has Anyone Tried Non Traditional Medicine Or Surgery Options To Deal With Stage 3 HS?
A myHSteam Member asked a question 💭

If you are stage3 HS patient then, can you write quick tips for others if anything is working with you? Remicade, Humera, Stellara are all options but have had many side effects but are there an new biologicals working for you as none of the above have helped me. Also share your recovery period experience or if you are willing to connect directly as have few questions about it

A myHSteam Member

CO2 laser surgery has been the most effective for me. Did Humira for a year and did but then was no longer effective for me. Doxycycline is no the strongest if I get an abscess but must take right… read more

Covid
A myHSteam Member asked a question 💭

Hi Team. Has anyone ever got the Covid vaccines and the Covid Boosters? Also, there's another Covid injection. Would you get that and if not, why not?

A myHSteam Member

I mostly agree with you Kelly. I prefer a natural method, and letting your immune system do what it supposed to. I did have three vaccines, probably out of fear of covid. I live in a sparsly… read more

What Biologic Medications Have You Been Put On To Help With Your Case Of HS?
A myHSteam Member asked a question 💭

I have been on Humira, first time was for two years with no improvement, things actually got worse. I then restarted Humira after being off of it for almost a year, and immediately things got worse from what progress I'd had previously. I am seeing a new dermatologist who seems to be more knowledgeable about HS than any other doctors I have seen so far. His plan is for me to be on IV antibiotics (infusion antibiotic) for six weeks and then start Selara. Has anyone had luck with that?

A myHSteam Member

I have been on Remicade infusions for a couple months now with no improvement, but the doctor upped my dose and says sometimes it takes time.