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Okay so how does HS work. Does it progressively get into worse stages or can it be prevented or is it stationary in one stage
How do you deal with the pain? What pain medications do you take? Do you get narcotics? For how long do the Dr's give them to you?Is it hard to get them to prescribe it to you? Which dr prescribe it?
I'm on a biologic called ' Amgevita' Stacie, which I take in epi- pen form once a week. Also use pain killers daily but really try to stay focused on being active & breathing well, which I find really… read more
Is or has anyone used the humira treatment and how was the results? Drs wanted me to try it a few years back but it was super expensive even though they had programs that would help the cost and I was worried about the warning about lung issues because my family has lung problems on both sides. I would be interested in anyones results with this treatment and also how hard was it to set up the programs that help pay for it and was it still expensive in the end?? Thanks in advance for any… read more
I take 800 ibuprofen but my dermatologist won't prescribe anything higher
My dermatologist prescribed me Tramadol and Prednisone to help me with pain right before my surgery in September. It took some of the edge off, but the pain was still there.
Hi that good news my dr wants to Starr me on Remicade waiting for insurance to approve. I was wondering if you have any side effects?
How do you deal with the pain
I have had to go to and receive care from pain management clinics it's been hard to find the right one who believes in HS and understand how painful this disease is but unfortunately in my case my… read more
Today my heart was broke. I went to a 'new to me' dermatologist. I had my previous out of state records sent. My journal from my last two flare ups. And was ready to talk business. The doc selected 'Does HS studies/research'... I knew I just had to be in the right place
The 1st nurse was super nice listened, looked, took pics (i have has in my groin, so it is uncomfortable to show people). The PA, looked, heard me say the phrase HS, as I checked my dates on my journal she stood up and said Im… read more
I would love to talk about how this affects us mentally if anyone would like to chime in that would be great
Percocet.
I’m so sorry, everyone. I guess that’s why we have our support group…to remind one another that we’re not alone in this suffering. 💕
i have bad wound and body pain, it makes it hard to do my job i just need some help with finding one cuz Tylenol dosen't work.
I have taken Advil for most of my life, but now I just use Neosporin with pain relief and a bandage if open. As someone mentioned, be careful with that anti inflammatories because they can cause other… read more
