Quick Links
About myHSteam
Powered By
Okay so how does HS work. Does it progressively get into worse stages or can it be prevented or is it stationary in one stage
π π HS goes by what they call the Hurley stage system ππ π€
How do you deal with the pain? What pain medications do you take? Do you get narcotics? For how long do the Dr's give them to you?Is it hard to get them to prescribe it to you? Which dr prescribe it?
I'm on a biologic called ' Amgevita' Stacie, which I take in epi- pen form once a week. Also use pain killers daily but really try to stay focused on being active & breathing well, which I find really⦠read more
Is or has anyone used the humira treatment and how was the results? Drs wanted me to try it a few years back but it was super expensive even though they had programs that would help the cost and I was worried about the warning about lung issues because my family has lung problems on both sides. I would be interested in anyones results with this treatment and also how hard was it to set up the programs that help pay for it and was it still expensive in the end?? Thanks in advance for any⦠read more
I take 800 ibuprofen but my dermatologist won't prescribe anything higher
My dermatologist prescribed me Tramadol and Prednisone to help me with pain right before my surgery in September. It took some of the edge off, but the pain was still there.
Today my heart was broke. I went to a 'new to me' dermatologist. I had my previous out of state records sent. My journal from my last two flare ups. And was ready to talk business. The doc selected 'Does HS studies/research'... I knew I just had to be in the right place
The 1st nurse was super nice listened, looked, took pics (i have has in my groin, so it is uncomfortable to show people). The PA, looked, heard me say the phrase HS, as I checked my dates on my journal she stood up and said Im⦠read more
How do you deal with the pain
I have had to go to and receive care from pain management clinics it's been hard to find the right one who believes in HS and understand how painful this disease is but unfortunately in my case my⦠read more
I use to be really good at ignoring the pain but it has gotten really bad lately. Every time I go to the Dermatologist she says there is not really anything she can do about the pain. I go on Friday and am going to ask her again but wanted to reach out here first. Also can I say it is nice to finally find a place to talk about this condition!!!
Aleve is my daytime pain killer and 600 mg of gabapentin at night. Codeine used to really help me and I swear it helped the boils pop! But good luck getting that nowadays! π€
Personally I hate taking medication because of side effects, most of the time side effects are worse than what you're trying to get rid of
Hi Meraude, here's the link for the cream I use, it's called ssd silver something, it's what hospitals use for really bad burn victims it has been helping with my HS and my wounds are all open. I⦠read more
Here in the photo is what cream the doctor π¨ββοΈ gave me ππππ
I have had joint pain and saw a rheumatologist he stated it was part of HS. They prescribed me methotrexate,
folic acid and remicade infusion. Has anyone else been on this?
I was also referred to a Rheumatologist - he advised HS is autoimmune disease. Skin fighting violently to get rid of infection. Cost me a fortune and put me on Imuran . Supposed to shrink the⦠read more