Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHSteam Member asked a question 💭
Rutherfordton, NC
June 16
 · 
Be the first to react
A myHSteam Member

I started using it last year. Scar tissue in my groin and ingrown hair are my biggest problem. My derm said it affects the strength of the hair. So far I haven't had a flare their since I started taking it. No side affects.

June 23
A myHSteam Member

I have been on it for a number of years. It has made a big difference. I used to have flare ups and leakage underneath my arms constantly, but since being on the medication, I haven't had any major flare ups.

June 16
A myHSteam Member

Hello, I am on 150 MG. Make sure to drink lots of water and just be informed that it is potassium sparing.

I went into remission for a year on 100 MG but for whatever reason I came out of remission a bit aggressively so they upped me to 150 MG and I am also avoiding yeast but am 1 month no flare.

July 10
A myHSteam Member

I have been on 100mg since January 2025, I have had only one flare up of an old site in the armpit. When it did flare up, it was not nearly as bad as it used to be and cleared up quickly with just keeping the area clean and applying topical antibiotics. It has also cleared my acne that I suffered from well into my 40s. I get a pimple or bump on my face maybe once every few months.

July 9
myHSteam

Yes! A myHSteam member shared that their dermatologist prescribed spironolactone for their HS, and they were curious about others' experiences with it. Many people with HS have tried it, and research shows some promising results. Spironolactone is a diuretic (a medication that reduces fluid buildup) that works as an Show Full Answer

Yes! A myHSteam member shared that their dermatologist prescribed spironolactone for their HS, and they were curious about others' experiences with it. Many people with HS have tried it, and research shows some promising results. Spironolactone is a diuretic (a medication that reduces fluid buildup) that works as an antiandrogen therapy for HS. Since hormones may be unbalanced in HS, it helps by blocking some of the effects of androgen hormones to restore balance.

A few studies have shown encouraging results:

- One study of 64 women with HS found spironolactone worked better than oral antibiotics
- A 2018 study found that after 7 months, participants had fewer lesions and less pain
- In another small study, 17 out of 20 women saw improved symptoms after just 3 months It's worth knowing that spironolactone is generally not recommended for men with HS due to the potential side effect of breast enlargement. It's also not recommended during pregnancy or breastfeeding.

Possible side effects include:

- Nausea, vomiting, or diarrhea
- Electrolyte imbalances (high potassium) causing shaking or light-headedness
- Skin rash or hair loss
- Headache, confusion, or tiredness

Always check with your doctor to see if it's the right fit for you, especially if you're taking other medications.

June 16

Related Questions

View All
A myHSteam Member asked a question 💭
Cartersville, GA

A myHSteam Member asked a question 💭

A myHSteam Member asked a question 💭