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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHSteam Member asked a question 💭
Massillon, OH
April 25
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A myHSteam Member

OMG yes, I’ve literally spent 2 years thinking I was the only person EVER! mine began behind my right ear and now consumes my jawline & neck… I was diagnosed last week.

April 28
myHSteam

Yes, many myHSteam members have shared experiences with HS appearing on both the face and neck. While HS most commonly affects areas like the armpits, groin, and thighs, it can develop anywhere hair follicles exist — including the face and neck. Some myHSteam members have described their experience with facial and neck HS:

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Yes, many myHSteam members have shared experiences with HS appearing on both the face and neck. While HS most commonly affects areas like the armpits, groin, and thighs, it can develop anywhere hair follicles exist — including the face and neck. Some myHSteam members have described their experience with facial and neck HS:

- One member shared that they get an average of three new painful boils on their neck every week
- Another member noted that their HS spread to their face, nose, lips, and jaw
- One member described waking up with a swollen nose that spread to their lips and jaw, and also experiencing lesions inside their mouth

It's worth noting that early signs of HS on the neck can include inflamed hair follicles, which can develop into deeper lesions over time. Some people also notice itching, pain, stinging, or burning 12 to 48 hours before a lesion appears. If HS is spreading to new areas, it's a good idea to check in with a dermatologist. There are several treatment options that may help, including:

- Topical or oral antibiotics
- Biologic medications (like TNF-alpha inhibitors)
- Corticosteroids or steroid injections
- Laser hair removal
- Surgery

One myHSteam member reported that steroid injections directly into neck lesions helped them heal, while another shared that a biologic medication brought them to nearly full remission. Everyone's experience is different, so working closely with a doctor to find the right approach is really important.

April 25

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