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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For those of us who are of age enough to experience Perimenopausal or Menopause issues, how has it affected your HS?

A myHSteam Member asked a question 💭
January 26
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Be the first to react
A myHSteam Member

I've been told that it gets better after menopause and also that it gets worse. It reminds me of the chicken pox vaccine issues. If you had chicken pox then you WON'T have shingles and now its the opposite if you had chicken pox you may get shingles. So its hard to believe anything they say anymore. There is no cure for HS so we will have it for a lifetime but I'm trying to find ways to avoid the flares and keep living life but I also have fibromylasia so that just makes things so much fun and more challenging.

February 3
A myHSteam Member

Heidi, I was diagnosed at age 28 with h.s. and was told at that age that it would get much better at menopause. I had a hysterectomy at age 47 and calmed down for about 5 years. However, my symptoms have returned. I believe it is just something they tell you get ppl and may believe it, but although there was a slack period, it worsened after that. I am 60 now, and still have h.s. problems, Ugh.

January 26
A myHSteam Member

I have read numerous articles with the same AI answer, learning nothing of the actual experience by someone. I'm looking for the "real, real" from an actual person who has had this experience.
Not AI, male doctors, articles of no experience. I'm talking real symptoms, hormones or unknown experiences.

January 26
myHSteam

How does menopause affect HS symptoms?

Menopause affects HS differently for everyone, and research shows mixed results. Studies have found that symptoms can improve, worsen, or stay the same after menopause.

Here's what research has shown:

* Nearly 40% of people reported worsening HS symptoms after menopause
* About 44% Show Full Answer

How does menopause affect HS symptoms?

Menopause affects HS differently for everyone, and research shows mixed results. Studies have found that symptoms can improve, worsen, or stay the same after menopause.

Here's what research has shown:

* Nearly 40% of people reported worsening HS symptoms after menopause
* About 44% experienced no change in their symptoms
* Approximately 48% saw improvement in their HS symptoms

myHSteam members have shared varied experiences that reflect these findings:

* "I went through menopause at 40 and still have HS flares"
* "My HS flares worsened after menopause"
* "My mom has HS, and her symptoms disappeared after menopause"
* "Since menopause, my HS symptoms have been different"

One member noticed lesions appearing in new locations after menopause, moving from armpits to breasts to groin.

The transition period (perimenopause) involves hormone fluctuations that may also impact HS, though it's hard to predict exactly how your body will respond. More research is needed to fully understand this connection.

The good news is that after menopause ends your menstrual cycle, you may have access to additional HS treatment options that weren't suitable before.

January 26

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