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Hi Warriors. I wanted to know if anyone had Deroofing surgery?

A myHSteam Member asked a question 💭
St Louis, MO

I am having a Deroofing surgery. My surgeon said HS will never heal if you have a lot of tunneling. I have tunneling everywhere. I go in January I will let everyone know how is it. It's supposed to clear my HS along with Sterlara.

November 20, 2024
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Answer Summary

Members shared encouraging experiences with deroofing surgery for HS tunneling, with several reporting years-long remission or significant... Read more

Members shared encouraging experiences with deroofing surgery for HS tunneling, with several reporting years-long remission or significant improvement in their affected areas, though recovery times varied from several months to nearly a year and scarring was common. Several members offered practical post-surgery advice, including using stretchy Nexcare tape to keep dressings secure in hard-to-bandage areas like armpits, washing surgical sites nightly with Hibiclens once healed, and wearing snug shirts to help hold bandages in place during recovery. A recurring theme was that while surgery provided meaningful relief and improved quality of life for many, HS sometimes migrated to new areas afterward, requiring ongoing management with medications like Cosentyx or Stelara alongside the surgical intervention.

A myHSteam Member

I had this surgery and it improved my quality of life drastically. However the recovery process was very difficult. It took almost a year for all of my wounds to heal. I had 4 done at once. Also, the scars from the surgery are very noticeable but I’ll take the scars over the pain HS caused me any day. After the surgery, HS moved to other parts of my body that wasn’t cut out so I’m still managing it.

November 25, 2024
A myHSteam Member

Hi Tracy!! I had this surgery many years ago and HS went dormant for years, close to 20 yrs to be exact. It came back a few years ago and my dermatologist put me on Cosentxy about 8 months ago and I have NO lesions. I still have the tunnel but because of the this drug, I don’t really need the surgery anymore. Hope this helps!

November 20, 2024
A myHSteam Member

I just had my right armpit done i have a huge scar now from front to back but not experiencing any flare ups. The whole surgery and recovery was fine just a little uncomfortable at times and he must have cut a nerve cause I've lost a lot of feeling under there. Good Luck with yours and hope you feel better soon

January 18, 2025
A myHSteam Member

I pray it goes well. The surgeon said when you have a lot of tunneling it want never get better.

November 20, 2024
A myHSteam Member

Hoping for a speedy recovery!

January 7, 2025

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