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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 27, 2024
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Members responded to a question about trying ertapenem infusion when Remicade isn't controlling flare-ups, with one member sharing firsthand... Read more

Members responded to a question about trying ertapenem infusion when Remicade isn't controlling flare-ups, with one member sharing firsthand experience receiving the antibiotic through a PICC line and noting the importance of keeping the line dry during treatment. Several members discussed alternative treatments they've found helpful, including Cosentyx with Kenalog injections, prednisone for occasional relief, topical oils like oregano and parsley blends, and skin care products designed specifically for HS management. A recurring theme was the willingness to try anything when standard treatments fail, with members encouraging each other to share results and offering practical tips like using waterproof PICC line covers for showering.

A myHSteam Member

I use my magic healer as a daily on my skin very good the yellow for everyday

July 6, 2024
A myHSteam Member

Cosentyx works pretty good if you can get your insurance to approve it. Along with Kenalog injection. And every once in a awhile ask your Dr.for prednisone that help too. And find our if you are insulin resistant I am and when I tried Trulicity for weight loss my Hidradenitis clear up. But it start messing with my bowels so I had stop.

July 11, 2024
A myHSteam Member

Same here I have already exhausted my fmla time I hanging on to my job by a thin thread

July 10, 2024
A myHSteam Member

At this point i am willing to try anything. Just hope it don't get worse then it is. Im gonna try it on just one for now and see how it does.

July 9, 2024
A myHSteam Member

I was thinking about ordering it too wasn't sure if it would work

July 8, 2024

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Wisconsin Dells, WI

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