Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have HS in groin area, stage 3. I'm currently in a double-blind biologics clinical trial. Not successful but could be placebo. After this is done, I'd like to talk surgery. Looking for people who have had the surgery. What was your experience? Are you happy you did it? Recovery time? What questions should I ask the Dr? Did you get skin grafts? What do I need to know? Thank you!

June 17, 2024
 · 
Reactions

Answer Summary

Members who have undergone surgery for hidradenitis suppurativa shared a range of experiences, with some achieving years of relief while... Read more

Members who have undergone surgery for hidradenitis suppurativa shared a range of experiences, with some achieving years of relief while others experienced recurrence, emphasizing the critical importance of complete core removal during excision to prevent the condition from returning. Several members described the reality of surgical recovery, including significant pain management challenges, visible scarring, the use of drains, and healing times that varied widely depending on the location and extent of surgery. A recurring theme was the value of finding skilled surgeons, particularly plastic surgeons experienced with HS, and being prepared for both the physical and emotional aspects of recovery while exploring biologics like Cosentyx as an alternative or complementary approach.

A myHSteam Member

The only thing I can think of is my sensitive to sun light. Other than that, I haven’t had any side effects. I do recommend it ! Hope this helps

June 28, 2024
A myHSteam Member

Hi Lynda, did you get any side effects because of cosentyx?

June 27, 2024
A myHSteam Member

Amanda293 yes, I was symptom free for 17 yrs. It was such a blessing. It’s reared its ugly head again. I’m on Cosentyx now, doing 1 a month now after doing every week for a month. I do believe it’s working!

June 23, 2024
A myHSteam Member

Just remember if you have the surgery and core is not removed it will come back. Altogether before the core was removed on my groin I was excised 7 times. After the core was removed I did not have anymore issues in my groin area.

June 22, 2024
A myHSteam Member

Thank you for sharing Lynda. I'm looking at plastic surgeons. You were free for 17 years (amazing) but then it came back in the past year :(? Sorry to hear that. Is it near the original site?

June 20, 2024

Related Questions

View All
A myHSteam Member asked a question 💭
Aberdeen, SD

A myHSteam Member asked a question 💭
Santa Maria, CA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In