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Has Anyone Had Success With Cosentyx For Severe HS?
A myHSteam Member asked a question 💭

I shot my 5th does of Cosentyx today (so 4weeks treatment), and I've seen no change. Looking for any info on duration, vs. severity, and if there is any hope, because I am so desperate.

posted April 11
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A myHSteam Member

Also it can take 16 weeks to see results according to website

posted April 13
A myHSteam Member

I am around the same dose as you on the Cosentyx and to me I'm seeing improvement verses when I was on Humira. Back about a month a month or so ago I was flaring so bad my dermatologist decided to change me and I am thankful because mine's no where near as bad as it was. I also use the clidimycin pledgets, they are pads like the stridex for acne, twice daily, i have a cream that they give me but can't think of the name of it right now to put under my stomach area and all, spirolactone and metformin daily, and I also do the weekly bleach baths. I've also found that taking the high dose weekly Vitamin D helps too.

posted April 11
A myHSteam Member

I am in the same boat but we can paddle together. ^_^ try to stay as positive as you can. I know how hard it is. I really do. My right armpit is the worst atm. See what a little more time does. I take my third dose tomorrow. I am noticing very small changes so far but at least not in the agony I was before I started. I am still in a lot of pain and itching like crazy but hoping for more relief soon. *hugs*

posted April 22
A myHSteam Member

I am just in so much pain I can't take it anymore. I am not a suicidal person, but if I can't get relief that may change. My quality of life is almost zero. I have it in my groin, around my anus, and my upper inner thigh. The thigh is the most recent, worst, and most painful area. I felt like I could manage it for the most part before that, but the thigh is unbearable. I'm only 5.5 weeks in on Cosentyx. I've noticed perhaps 10 to 15% reduction in drainage, but no change at all in pain and itch, or number of instances. My Dr. seems so positive that I will see results quickly, but it's good to know it could take up to 16 weeks. Thanks for that info.

posted April 21
A myHSteam Member

I am currently on Cosentyx but not a full week in yet. Add me to your team and you can follow my success or failure. Also pics of severe right armpit on my page. Hope you find some relief. I am really struggling.

posted April 13

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