Hi, I'm from Devon, England and here there is limited support here for HS - I fought for over 6 years for a diagnosis (originally being told its dry skin and was prescribed moisturiser). The GP says to attend the hospital for draining with each new boil but when attending the hospital they tell me they can't do it! I self care (often sterilising something sharp and cutting the area to relieve pain from pressure) and applying dressings. My partner and family hate me doing this but it's so painful… read more
Lottex2001
So I've had this ten years now and untill I recently stumbled upon this group I too found it hard to find others that were in the same boat as me. I too get these in my groin and much like you I've had loads of antibiotics from flucloxacillin, clindamicin, clarithramycin and lymcycline (not sure any of these are spelt properly)
I currently take one lymcycline a day and I'm also using driclor you can buy it on Amazon it's a deodorant of sorts which you can use on you're groin.
As for cutting them yourself I totally get it why you'd do this. It's flipping tough going but you can do this
Devon plx try my magic healer salve you can order off Amazon. They also have a Instagram and website. It's the purple jar 💜 it's absolutely amazing!!!
Hello. My name is a Tammi & I’m from Marion, IN. I feel your pain. It has taken almost 2 1/2 yrs to get anyone to listen to me. I have other medical conditions including an LVAD (which is basically an internal heart pump that requires electricity or batteries all the time). So I see Drs all the time. No one wanted to address this issue until I finally got an infectious disease Dr to look at it. He sent me to a dermatologist who didn’t even give me a diagnosis but said they couldn’t help me. Had to finally see a colorectal surgeon who didn’t want to do any surgery because of my other conditions. So I understand about trying all different kinds of things. I finally got them to prescribe Lidocaine gel that I can apply when it’s so sore I can’t handle it. It does give you some relief. I use antibiotic ointment with pain reliever & Benadryl cream on areas that itch. I was on Doxycycline for my another infection that I had & they said it would would help with HS but it doesn’t help me at all. Finally they gave me Bactrim & it helps but doesn’t take care of it. I’m finally scheduled for the surgery on 9/6/23 now after my heart Drs insisted that something be done. This has changed my whole life. I have had breast cancer 3 times (chemo/radiation), CHF (congestive heart failure-caused by my cancer chemo), Diabetes, many other surgeries including a hysterectomy, kidney stone, gall bladder, an infection that almost killed me, a stroke, seizure, then my kidneys were damaged by the treatment for the infection so I had to go on dialysis for about 3 month during which time the lesions really started to get bad; nothing has changed my quality of life as much as this.
I am hoping that the surgery will give me relief & some of my life back.
You might try the lidocaine though. It really helps. And yes I have many scars that have tunneled. Mine is in my groin area which is very hard to deal with.
I wish you all the luck in the world.