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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Opinions On Cosentyx ? I Wasn't Able To Do Humira Or Remicade And Now We're Trying Cosentyx, Any One Else Tried This Drug?

A myHSteam Member asked a question 💭
Gadsden, AL
June 9, 2023
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A myHSteam Member

I tried a little of everything and no help yet ,so what to do now any answers

June 12, 2023
A myHSteam Member

Keep at it. Aloe Vera Oil helps with the inflammation and pain. I now can walk totally upright with no pain. It may not work for everyone. But it’s working for me. But you sound like me. I am fed up with this s__t. And will try anything.

January 24, 2024
A myHSteam Member

Hey, hope you are all having a smiley day. I have been on cosentyx (first round ) for about 6 months now. My body has not had as many boils lumps, pimples etc but I have found that I now have much more swelling with fluid / oedema. I am going to the gp on Tuesday to be refered to rhumatologist. I have read that comobidities include arthritis type disease. Just a hunch though.

June 11, 2023
A myHSteam Member

My son is 14 and has HS and tried Humira with no success. His Dermatologist was able to get Cosentyx approved. He has been on it for 2 months and has seen no improvement. He has actually been having more flare ups than ever
We're not sure if the flare ups were made worse by Cosentyx, so we're giving it more time.

June 10, 2023
A myHSteam Member

I wish I had an answer. I take Humira which really doesn't help. My dermatologist won't start Cosentyx until it gets approval for use on HS. Your doctor was able to prescribe it for you already?

June 10, 2023

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