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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Wish You’d Known About HS When First Diagnosed?

A myHSteam Member asked a question 💭
San Francisco, CA
April 5, 2023
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A myHSteam Member

What I wish I had known?
1. I wasn't dirty. 2. It was not my fault! 3. It was not because I was fat. 4. The damage too many antibiotics at high dosage could do. 4. That I wasn't a freak! 5. That I wasn't alone. 6. That the doctor, even at the Mayo Clinic, is not always right and often doesn't give a damn how HS affected me emotionally!
This list could go on forever! 😖

April 6, 2023
A myHSteam Member

Sadly, your situation is typical of ignorant medical professionals and a new diagnosis. 😣 There's really no perfect fix for HS and every treatment works out differently for each person. The most important thing to remember is that you didn't do anything to deserve this and it is not your fault! 🤗

April 11, 2023
A myHSteam Member

That I am not the only one that is suffering with this disease. There are other people to talk to xxxx

April 5, 2023
A myHSteam Member

I'm so sorry Aquila for what you have been through. It's so hard to find good doctors.

April 19, 2023
A myHSteam Member

Trina, everyone is on this site for support! Don't be sorry for being grouchy or having a bad day. 🤗

April 11, 2023

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