Doctors attitudes towards overweight patients and placing the blame for afflictions on that, instead of working towards a solution that can work for the patient. I've seen the eyes glaze over on doctors when going into to talk about this. I can tell by their attitude and response that they are thinking "well, you are fat, so...." This isn't a disease that affects only overweight patients, it affects patients of all sizes.

Many General doctor aren’t aware about Hs and they diagnosis that is skin cysts or Boils.

Basically everything about this disease or whatever it is, isn't being talked about enough. I'm angry and tired of dealing with this mess. Most dermatologist are dumbfounded, and don't know or care about what's happening to you. I'm so disgusted with pus and blood on a daily. It's a shameful disease that will not let up and give you a moments rest. I'm so tired from lack of sleep.

It’s super disheartening that the medical research isn’t a priority. Need to stop looking at the skin part and dig deeper. They need to figure out what happens on the inside, the 2 sweat glands, the inflammation, concurrent diseases, and the genetics piece is huge. I think that is the one possible cause that seems to be shared by soooo many HS sufferers. Is there a gene mutation that causes this?? We will prob never know because the research is limited or I know in Canada it is anyways. Just so frustrating that the “ experts” are so oblivious to so much about this condition. It’s like they think if we drain and bandage than it’s solved. Take some antibiotics and send us on our way. It’s like ( we’ll kind of like it, but hope you get where I am going with this) if you are a diabetic that just ate sugar to regulate a drop in blood sugar levels but didn’t address the insulin ( underlying issue) and sent the person on their merry way because the immediate need is taken care of. It’s so sad because soooo many people suffer unimaginable pain, physical, mental and emotional hell - and not many( health professionals) who have the resources and ability to make a difference by advocating for more research or doing research exist. It’s just sad.

I would like to know is there anyway someone can collect disability for this disease. There are times that I can't move my arms or even walk because the pain is so excruciating.