Aww Trina, sorry to hear. I really can't imagine. I have always just had it in my groin area and no where else. I feel lucky for that. I am still so pleased I found the diet and have no HS activity now....I really feel I am getting a break from HS!

I have had HS for over 40 yrs. I can control it by diet....Its been about a month now with no HS activity. Let me know if you're interested!

I am going too one the 1st of the year and I will certainly ask about it.

I have had my HS for over 15 years and the name HS was never diagnosed. Just found an OBGYN doctor two years ago that finally gave my symptoms a name.
I had gone too 5 different Doctors and none, NONE of them came up with HS.

So I am still trying to find a Specialist in Texas too treat me with other than Clydiamism that doesn't do anything for it.

I think we all hope somewhere, someone is researching HS and how to better treat it! How they do it doesn't really matter, just that they are doing it! Hugs Baz!

I can’t say on here we’re that information came from Bon Bon’s 🤫