Hidradenitis suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1778 questions
My Name Is Brian So Obviously I’m A Male. I Have Noticed That The Vast Majority Of The Members Are Female. How Did I End Up With It?
A myHSteam Member asked a question 💭

Had several problems over years with what I was told was staphylococcus. I assumed that’s what this was. I was wrong and it’s been miserable.

A myHSteam Member

Many guys here.

posted April 14
Can Anyone Recommend A Great Doctor In The NYC/Long Island Area? My Dermatologist Haven’t Been Great; Should I See An Immunologist?
A myHSteam Member asked a question 💭

I was recently diagnosed last year but realize I have had flare ups for a few years. We just always thought they were ingrown hairs in my groin/pantyline. Currently in the midst of one and I’m miserable. I’m lucky b/c mine aren’t that bad, but I’m terrified of what they could become.

A myHSteam Member

Also I love my Rheumatologist .....
Dr. Tan Mark
222 E Main St Ste 312
Smithtown, NY, 11787

posted April 17
Looking For Products That Help With Dressing Under Harm Hidradenitis Suppurativa
A myHSteam Member asked a question 💭
A myHSteam Member

Non adherent pads are a must!

posted April 13
Has Anyone Ever Had Botox Injections Into The Area For HS?
A myHSteam Member asked a question 💭

I am stage 1, i had a lump that was mistakenly diagnosed as a sebaceous cyst surgically removed last year (he then diagnosed me with HS). It healed slowly and when I finally saw a dermatologist she said I should never have had surgery, I should have been referred to dermatology. I have developed a small under the skin lump since then right near the same area. You can barely see it , it doesn’t emit fluid, but i get bouts of it being sore.

Ive tried doxycycline, im on the pill, clindamycin and… read more

A myHSteam Member

That is a strong good antibiotic.but maybe not for your problem.i have tried this year EMUAID.sold on Amazon
My brother sent it to me and it took 3 to 4 weeks and it took care of a big flair up.it… read more

posted April 12
I Wonder If Pore Treatments Could Help....
A myHSteam Member asked a question 💭
A myHSteam Member

Pore treatments typically target acne by cleansing the pores, but hidradenitis suppurativa (HS) is a different condition that begins with follicular occlusion, or plugging of the apocrine sweat gland… read more

posted April 11
I Wonder If There Is A Possibility Of Hs Going Away After Menopause? Just Due To The Huge Hormonal Change.
A myHSteam Member asked a question 💭
A myHSteam Member

NOPE. Don't count on that.

posted April 11
My Dermatologist Is Starting Me On Humira. Any Info Or Advice Regarding This Treatment If You're On It Would Be Appreciated.
A myHSteam Member asked a question 💭
A myHSteam Member

Same as Ashley. Very few flaireups since on Humira. The flairs are actually the old ones acting up.
Side effect now is extremely dry skin.

posted April 9
Anyone Participate In Any Clinical Trials For Their HS Treatment? Positive Or Negative Results?
A myHSteam Member asked a question 💭

I’ve had HS for 25 years, diagnosis for 10 years, stage 3.

A myHSteam Member

Thank you so much, Ashley. I’ll take a closer look!

posted April 9
I Have Sharp Pains In My Front Upper Thigh. Is There A Surgery For This?
A myHSteam Member asked a question 💭
A myHSteam Member

Thank you Heather! I pray that things get better for you soon.

posted April 23
I'm About To Start Humira My Doctor Says It Witg Help With Hs. Anybody Elese Used This
A myHSteam Member asked a question 💭
A myHSteam Member

I can't take Humira, but Dr. put me on Cosentyx. I am 4 weeks into treatment with no results. But my condition is severe. I still have hope, but it's really rough.

posted April 11
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