Hidradenitis suppurativa Questions and Answers | myHSteam

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1712 questions
With HS Can You Also Get Red Bumps That Remind You Of Acne On Your Arms And Neck Too.
A myHSteam Member asked a question πŸ’­
A myHSteam Member

I have no answer but they usually on sweat glands

posted March 26
Anyone Dealing With Mental Health Issues?
A myHSteam Member asked a question πŸ’­

I would love to talk about how this affects us mentally if anyone would like to chime in that would be great

A myHSteam Member

Percocet.

posted 6 days ago
Hello Everyone. This Is A Question To Those Who Have Had Surgery. I Went For A Consultation And Apparently Inusrance Doesn't Cover It. True?
A myHSteam Member asked a question πŸ’­
A myHSteam Member

I feel like you should reach out to your insurance and see what hospital, doctors, surgeons are in network because that maybe an issue as well

posted 4 days ago
Struggling With A Very Painful Hard Red Lump Under My Breast, Best Painkillers To Use And Any Tips Helping To Draw It Out?
A myHSteam Member asked a question πŸ’­
A myHSteam Member

Castor oil. It helped inflammation and made it go down some.

posted March 29
Anyone Else Have The Tracts From Hs? I Have Them On My Thigh And They Hurt So Bad
A myHSteam Member asked a question πŸ’­
A myHSteam Member

I have them in my groin, around my anus, and more recently on my upper inner thigh. The others were manageable. The thigh ones are crippling. They've only gotten worse and more painful, and more… read more

posted 6 days ago
Https://stepuphsstudy.com/#aboutStudy
A myHSteam Member asked a question πŸ’­

For anybody who might be interested. I'm trying to convince my son to participate.

Hidradenitis Suppurativa Clinical Research Study
Hidradenitis Suppurativa Clinical Research Study
Anyone In The Stellenbosch/ Cape Town Area Who Know's Of Any HS Treatment And Where To Get It Please Let Me Know.
A myHSteam Member asked a question πŸ’­

I had my first encounter with HS in 2022 had to get it surgically drained . About 2 weeks ago i had my second one after 2022 , this one was way worse and more painfull , also had to get it surgically drained felt like I wanted to die 😭 . The wound is currently busy to heal ,its been a week after drainage (any tips on how to speed up the wound healing ) .Just really need some advice on how to treat HS and if there's any treatment/supplements one can use.

A myHSteam Member

I'm so sorry you're going through this...I've had it for years and it can be dibilitating for me at times...I found once it's opened up and drained mostly, to use a good bandage for a day or two,to… read more

posted March 22
Starting Rifampicin And Clindamycin For 3 Months Soon Which I Hated When I Was On It Last . What Have Your Experiences With This Combo Been?
A myHSteam Member asked a question πŸ’­
A myHSteam Member

It actually helped, probably gave me a 30% reduction in symptoms, but as soon as I was off it, it came back with a VENGANCE.

posted 6 days ago
One Thing I'm Curious About Is I Know Smoking Cigarettes Make Hs Worse How About Weed? Or Edibles. Also Curious If Alcohol Does Or Just Beer
A myHSteam Member asked a question πŸ’­

Just trying to get a idea what I should stay away from or if drinking certain drinks is better for you then other with the condition we have. Also was curious about cannabis for pain solution.

A myHSteam Member

They're doing a study on it at the moment and they say it's great for inflammation which would help HS. I believe it's the cure for everything, but I just use edible CBD.

posted March 26
How Do You Know What Stage Of HS You Have I Feel Like Mine Has Been Getting Worse An Definitely Seems Like Stage 2 At The Least.
A myHSteam Member asked a question πŸ’­
A myHSteam Member

Me too.

posted March 24
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