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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2062 questions

Where Can I Buy Manuka Honey

A myHSteam Member asked a question πŸ’­
A myHSteam Member

I get my Medihoney wound gel from Amazon. I've gotten manuka honey bandages from my local Walgreen's before too.

posted July 3

My Insurance Will No Longer Pay For Humira. Since Now There Is Generic For Humira, She Had To Put Me On Hyrimoz. Does Not Work As Well.

A myHSteam Member asked a question πŸ’­

Already had 1 breakout since the switch. Anyone else incur this problem?

A myHSteam Member

Remicade has helped me influxamaub is the generic I take that I've improved also take oregano oil everyday

posted July 6

I Wanted To Ask About Cosentyx Injection Therapy. Is It Useful? Will There Be Severe Side Effects? Has Anyone Taken It?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Hey, thanks for the reply. 😊😊 this is good to know. Yes, it is exactly like me, dairy products / milk products are also bad for my flair ups.
All the best and hope it gets better for life 😍

posted June 28 (edited)

Has Anyone Ever Tried A Infusion Called Entrapenem I Am On Remicade But It Not Controlling My Flare Ups Like It Should

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Paige7 i seen the reviews and they were all good. Try it they have different ones for your type of HS and other skin condition.

posted July 12

Hello Does Anyone Have Experience With Humira?

A myHSteam Member asked a question πŸ’­

My dermatologist keeps insisting I try humira but I'm honestly terrified to try it.

A myHSteam Member

I'm glad I read your reply, Eddie. I've yet to explore options but considering cosentyx. Scared of starting up the whole nightmare of procedures but I have to. Had very little time to get on here and… read more

posted June 27

Hi Everyone Can Anyone Give Advice I Have Tunneling In Groin Area Do I Need Surgery To Remove Them As Nothink Else Works

A myHSteam Member asked a question πŸ’­
A myHSteam Member

I have now had 5 surgeries in the groin for the same reason, it removed the tunnels in the spot they did and has not returned there however there is always the risk of another spot happening but if… read more

posted June 29

What Have You Guys Done About The Scaring? I Am Scaring So Badly. It's Dark And You Can Visibly See The Tunneling, It's Covering A Big Space

A myHSteam Member asked a question πŸ’­
A myHSteam Member

I have not used it yet but I have heard good things about anything silicone based! There is gel, lotions, and something called cica care depending where it is. Hope this helps 😊

posted June 29

Starting Humira Next Week. Has Anyone Tried This Medication?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Yes

posted June 26

Has Anyone Had Inner Thigh Surgery Or De-roofing?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

I have had multiple done and post surgery I find it significantly less painful than the flares. It takes some time to heal but i honestly found the surgeries on the outer labia easier to dress than… read more

posted June 29

Need Help! Managing HS During Stress & Fatigue - Tips & Advice Needed!

A myHSteam Member asked a question πŸ’­

Hi everyone,

I hope you are all doing well.

Kindly, I am reaching out because of the ongoing struggles with managing hidradenitis suppurativa, especially during times of stress and fatigue. These flare-ups are becoming overwhelming, and hope is getting lost on how best to cope.

Could anyone please share their experiences or tips on how they manage HS during stressful and tiring periods? Any advice on techniques or routines that help you avoid triggers would be greatly appreciated.

Thank you… read more

A myHSteam Member

Being stress out use to cause the worse flare ups for me. I try not to stress even though it's hard. I would use hot compresses, antibiotics when I feel a flare up coming on, ointments also helped me.

posted June 20
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