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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Would You Give To Someone Newly Diagnosed With HS?

By A myHSteam Member 30 answers

How Do Beverages With Caffeine Affect Your HS?

By A myHSteam Member 58 answers

Are You Frustrated With Finding Effective Treatments For HS?

By A myHSteam Member 35 answers

Do You Follow A Specific Diet To Help With HS?

By A myHSteam Member 30 answers
2225 questions

Has Anyone Found That They Get A Flare Up When They're Already Ill/sick?

A myHSteam Member asked a question 💭

I've recently come down with a cold/flu but before I started to feel sick I got a really bad flare up and a mouth ulcer/canker sore. I'm wondering if illness might bring on a flare up or if a flare up might bring on illness. Either way it feels like a double whammy attack on my body!!

A myHSteam Member

Yes, it's possible for illness to trigger a flare-up of hidradenitis suppurativa (HS) or for a flare-up to coincide with illness. Here are some key points from my knowledge base:

- Flu-Like Symptoms… read more

September 21

Hey Community! Can Everyone Share Their Experiences With HS? What Causes Your Flare Ups? How Do You Prevent Your Flare Ups?

A myHSteam Member asked a question 💭
Flint, MI
A myHSteam Member

Living with hidradenitis suppurativa (HS) can be challenging, and understanding what triggers flare-ups is crucial. Here are some common triggers and prevention tips based on my knowledge base:

read more

September 20

Ladies With Hormonal IUD. Did Your Flares Start/get Worse When You Got The IUD?

A myHSteam Member asked a question 💭
Troy, NY

I got my Kyleena IUD placed back in 2019. I got my first ever flare up a month later and have been dealing with them ever since. I’m starting to think that it is directly related to my hormonal BC. Has this happened for anyone else?

A myHSteam Member

Now that I think of it I had gotten a mirena in like 2008 -2011 and it started about then and got way worse by 2015...

September 28

What’s Everyone’s Food Triggers? If You Have Any?

A myHSteam Member asked a question 💭
Bronx, NY
A myHSteam Member

Elaina....on keto you mainly eat meats (any kind.....bacon, pepperettes, beef pork chicken, fish... etc....Any veggie......some have some sugar like corn and carrots, but I eat all of them.....salads… read more

September 25

How Is Everyone Today? I Hope The Day Wasn’t Too Hard On You 💗

A myHSteam Member asked a question 💭
Bronx, NY

Is There Any Correlation Between The Birth Control Nexplanon And HS?

A myHSteam Member asked a question 💭
Lake Elsinore, CA

I have also recently tested positive for allergy to all grains including rice and corn. Never had problems before. I have had several anemias and moderate bone marrow failure since infancy to include neutropenia, thrombocytopenia, and aplastic anemia. I also recently tested slight positive for prp protein but no syphilis. I don't smoke and I'm not obese but my HS is considered severe, I'm not able to take HS meds due to my anemia. I'm a 24 year old female.

A myHSteam Member

I don’t know for sure but after my daughters birth via c section I went on nexplanon and almost instantly my HS went haywire and has unfortunately gotten worse since, been 3 years. I did ride it out… read more

September 15

How To Get Rid Of The Smell From The Leaking Lesions

A myHSteam Member asked a question 💭
Perryville, AK
A myHSteam Member

Managing odor from leaking lesions due to hidradenitis suppurativa (HS) can be challenging. Here are some strategies based on my knowledge base:

- Use Antiseptic Washes: Clean the affected area with… read more

September 14

Yes Can Recommend A Good Scar Cream For My Armpits

A myHSteam Member asked a question 💭
Apple Valley, CA

I have HS had for quite a while now now I have terrible scarring under my armpits.

A myHSteam Member

When dealing with hidradenitis suppurativa (HS) scars under the arms, some options to consider include:

- Silicone-based treatments: These come in various forms and can be effective for different… read more

September 14

After Having Hs For 5 Years I Have Come To One Conclusion That No Medicine Is Going To Help Until N Unless U Maintain Ur Diet N Stay Fit

A myHSteam Member asked a question 💭
West bengal ,Kolkata

Hi Everyone, Is There Anyone Who Have Tried The Carnivore Diet To See If It Helps?

A myHSteam Member asked a question 💭
Pretoria, ZA
A myHSteam Member

Yolandie I believe totally that what you put in your mouth directly affects your general health, and for me it directly affects my HS. So you may be interested in knowing that if you feel sugar is… read more

September 16
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