Hidradenitis Suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2026 questions

Has Anyone Ever Tried A Infusion Called Entrapenem I Am On Remicade But It Not Controlling My Flare Ups Like It Should

A myHSteam Member asked a question 💭
A myHSteam Member

Paige7 i seen the reviews and they were all good. Try it they have different ones for your type of HS and other skin condition.

posted 3 days ago

Hello Does Anyone Have Experience With Humira?

A myHSteam Member asked a question 💭

My dermatologist keeps insisting I try humira but I'm honestly terrified to try it.

A myHSteam Member

I'm glad I read your reply, Eddie. I've yet to explore options but considering cosentyx. Scared of starting up the whole nightmare of procedures but I have to. Had very little time to get on here and… read more

posted June 27

Hi Everyone Can Anyone Give Advice I Have Tunneling In Groin Area Do I Need Surgery To Remove Them As Nothink Else Works

A myHSteam Member asked a question 💭
A myHSteam Member

I have now had 5 surgeries in the groin for the same reason, it removed the tunnels in the spot they did and has not returned there however there is always the risk of another spot happening but if… read more

posted June 29

What Have You Guys Done About The Scaring? I Am Scaring So Badly. It's Dark And You Can Visibly See The Tunneling, It's Covering A Big Space

A myHSteam Member asked a question 💭
A myHSteam Member

I have not used it yet but I have heard good things about anything silicone based! There is gel, lotions, and something called cica care depending where it is. Hope this helps 😊

posted June 29

Starting Humira Next Week. Has Anyone Tried This Medication?

A myHSteam Member asked a question 💭
A myHSteam Member

Yes

posted June 26

Has Anyone Had Inner Thigh Surgery Or De-roofing?

A myHSteam Member asked a question 💭
A myHSteam Member

I have had multiple done and post surgery I find it significantly less painful than the flares. It takes some time to heal but i honestly found the surgeries on the outer labia easier to dress than… read more

posted June 29

Need Help! Managing HS During Stress & Fatigue - Tips & Advice Needed!

A myHSteam Member asked a question 💭

Hi everyone,

I hope you are all doing well.

Kindly, I am reaching out because of the ongoing struggles with managing hidradenitis suppurativa, especially during times of stress and fatigue. These flare-ups are becoming overwhelming, and hope is getting lost on how best to cope.

Could anyone please share their experiences or tips on how they manage HS during stressful and tiring periods? Any advice on techniques or routines that help you avoid triggers would be greatly appreciated.

Thank you… read more

A myHSteam Member

Being stress out use to cause the worse flare ups for me. I try not to stress even though it's hard. I would use hot compresses, antibiotics when I feel a flare up coming on, ointments also helped me.

posted June 20

Are You Frustrated With Finding Effective Treatments For HS?

A myHSteam Member asked a question 💭
A myHSteam Member

Hibiclens is good and I use Clindamycin topical get in groin and under my boob's it's helping and medicated body powder Gold Bond under breast to keep dry!!!

posted 4 days ago

I'm Good

A myHSteam Member asked a question 💭

Does Anyone Else Get HS Flares On Or Near Their Eye? How Do You Manage Them? Also How About In Your Hair On Your Head?

A myHSteam Member asked a question 💭

My son is African American and I has always had very dry skin. The Cosentyx shots have been helping with flares but gave him plaquing in areas on his face, ears, hair and the back of his hands. Any advice?

A myHSteam Member

I just started consentxy recently and have noticed eczema like spots on my arms, chest and face.

posted June 18
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