Hidradenitis suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1558 questions
I Have Just Been Put On Rampricin And Clindamycine. Has Anyone Found These Work? Has Anyone Had Any Bad Side Effects?
A myHSteam Member asked a question 💭
A myHSteam Member

👀

posted February 24
What Do People Do About Covering Or Bandaging Their Areas Between Flare Ups?
A myHSteam Member asked a question 💭

Hullo, all!

My HS was being an absolute pain in the behind (a flare up the likes of which I'd never experienced before!) when I got my diagnosis in December, I haven't been consciously tending to wounds prior to then. I had a real problem healing up and have been put on lymecycline.

The thing is - during the bad times, I got used to keeping the areas covered every day, changing the dressings at least once a day (more if necessary), but I've found that now that the lymecycline is doing it's job… read more

A myHSteam Member

Once my flares are dormant I do not cover up but def keep up with my antiseptic washes, showering immediately after workingout, and avoiding the heat as it's a trigger. And as you said i believe it's… read more

posted February 19
I Just Tried Radiation They Say It Still Takes Time Has Anyone Tried This
A myHSteam Member asked a question 💭
Why Is My Hs Constantly Leaking?
A myHSteam Member asked a question 💭

I thought it would just empty and heal, but it's constantly releasing pus or blood.

A myHSteam Member

Yes. And you have to remember it's not always infected puss. It's just the white blood cells that are gathering there and it continues to leak. It's the secondary infections that you need to be on top… read more

posted February 20
Surgery Codes Meaning?
A myHSteam Member asked a question 💭

Hello I’m getting surgery for my under arms soon and I can’t remember exactly what the doctor said he was going to do. I do have the surgery codes and when I looked it up it said

“Excision of skin and subcutaneous tissue for hidradenitis, axillary;
with complex repair and Adjacent tissue transfer or rearrangement.”

Has anyone had a similar surgery and can explain exactly what he is going to do. I know I can call the office but I’ve been busy lately that I haven’t had the chance. Anything… read more

A myHSteam Member

I had surgery on September 29, 2023, and i have 4 different reoccurs and then I went to new plastic surgeon and she gave me a few tips as I followed them and then I was supposed have to follow up then… read more

posted February 19
Is Changing Diet For Hs Necessary? I Am Mentally Ill As It Is, I Feel Like Dieting Might Throw Me Over The Edge.
A myHSteam Member asked a question 💭
A myHSteam Member

I agree with Bonbon that dieting isn’t for everyone what I found works best for me is exercising once a day shower right after of course and watching what I eat. I think of dieting a new lifestyle for… read more

posted February 20
I’ve Never Heard Of This And Have Been Suffering From It For 3 Yrs. Is It From Smoking?
A myHSteam Member asked a question 💭

I thought maybe my hygiene was going downhill. But it doesn’t matter how careful I am or if I shaved with a razor. I smoke a pack a day of cigarettes, but have for 20 years. Only experienced this for 2. I flare up every month or month and a half. Should I apply ice? So painful, afraid of infections.

A myHSteam Member

So I use ice for my really bad lesions all the time. Or cold water therapy. It isn't caused because you might have gotten lacks about your hygiene. But what will cause more lesions is shaving or… read more

posted February 20
Is Anyone Seeing A Pain Management Doctor? The Pain And Swelling Are So Bad I Just Need Some 😮‍💨 Relief
A myHSteam Member asked a question 💭
A myHSteam Member

No but went to ER to get them drained. Oh what a relief it is.

posted February 15
How To You Get Rid Of Inner Thigh Blackheads And Scarring!! Helpppp
A myHSteam Member asked a question 💭
A myHSteam Member

You can't get rid of them. What I've found is if you Express too many of the black heads. That leaves it open more for your immune system to send in the white blood cells. And you're more likely to… read more

posted February 20
Hi,Does Anyone Here Have Lipedema, Lymphedema N Or Dercums?
A myHSteam Member asked a question 💭
A myHSteam Member

Recurring infections – Lymphedema can increase the risk of skin infections in the affected area
If you experience any of these symptoms, speak with your doctor. Early treatment can help manage the… read more

posted February 15
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