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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2061 questions

I Want To Know Has Anyone's Symptoms Changed Over The Seasons And Years? What Treatments Have You Tried?

A myHSteam Member asked a question 💭

For example is there speciality doctors for this besides dermatologist

A myHSteam Member

Some individuals with hidradenitis suppurativa (HS) have reported changes in their symptoms over the seasons and years. For example, one person mentioned that pregnancy hormones made their skin go… read more

posted July 15

When I Get A Flare Up Do I Just Put The Lotion On It They Gave Me.i Can't Run To Doctor Every Time

A myHSteam Member asked a question 💭
A myHSteam Member

Managing hidradenitis suppurativa (HS) flare-ups involves a combination of home care and medical treatment. Here are some tips from the knowledge base:

- Skin Care at Home: Keep the area clean with a… read more

posted July 15

Does Anyone Know If Anyone Or Anyplace Is Working On A Cure??

A myHSteam Member asked a question 💭
A myHSteam Member

Use the product called My Magic Healer. I am spreading the word. Its a miracle and will change your life. My HS is not 100% gone but its beyter than it was and I have 0% pain and that's a win for… read more

posted July 18

Does Anyone Get A Sore On Their Stomach

A myHSteam Member asked a question 💭
A myHSteam Member

No ! Right , thank god !!

posted July 14

Do A Lot Of You Guys Have Therapists? I've Been Thinking Of Getting One Because My HS Is Really Effecting My Mental Health Lately.

A myHSteam Member asked a question 💭

I've had HS for 8 years now. Even though it's the summer I'm still depressed because of my HS. It just sucks. I only get them on the groin area which is just so uncomfortable and hard to explain to others. Most days I can't even walk without pain.

A myHSteam Member

i understand and you're not alone ♥ i have BPD (borderline personality disorder) and Bipolar depression type 1 so i understand the toll that suicidal thoughts have and when you've never had them… read more

posted 4 days ago
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

My Son Has Had HS Now For Years And Recently Was Iagnosed As T1 Diabetic. I've Learned They Go Together Often, To My Surprise! (21yrs Old).

A myHSteam Member asked a question 💭

My gut feeling is that he may have been diabetic for many years but undiagnosed and untreated. He has, for many years since becoming a teanager (puberty stage), gone through episodes of nausea, vomitting, abdominal discomfort, severe fatigue, headaches and other symptoms lasting anywhere from 4 days to 3+ weeks and counting (current situation) before his symptomslet up and there's some relief.

He has been seen by every doctor-PEDI, Endo, GI, Dermatologist and has had so many test, blood and… read more

A myHSteam Member

I'm sorry to hear about your son's diagnosis. It's true that hidradenitis suppurativa (HS) and diabetes can be connected. Here are some key points from the knowledge base:

- Connection: People with… read more

posted July 11

I Am Pregnant And My Dermatologist Wants To Put Me On Humira. My OB Won't Give Me A Yes Or No. Has Anyone Been On Humira While Pregnant?

A myHSteam Member asked a question 💭

My OB said it's my decision to weigh the risks and benefits

A myHSteam Member

yes I took Humira during my entire pregnancy ! I nor my child had any side effects

posted July 15

My Skin Is So Itchy Around My Flares And Boils Nothing Helps 😫 Suggestions

A myHSteam Member asked a question 💭
A myHSteam Member

Yes to the Vicks vapor rub!! I'm a true believer in that stuff lol it helps with headaches, muscle aches, toothache, ear aches, itching , toenail fungus,etc... I sometimes have to rub my entire body… read more

posted 3 days ago

Has Anybody Been Diagnosed With Reiter's Syndrome, Polyarthralgia, Rheumatoid Arthritis, Or Osteoarthritis, Since Having HS?

A myHSteam Member asked a question 💭
A myHSteam Member

Yes, people with hidradenitis suppurativa (HS) have been diagnosed with various inflammatory joint conditions. Here are some relevant points:

- Rheumatoid Arthritis: Individuals with HS are more… read more

posted July 8

To The Women Who Have HS; Has It Affected Your Ability To Get Pregnant? Just Curious If Anyone Else Thought HS Affected Infertility.

A myHSteam Member asked a question 💭

I have moderate to chronic HS along with Fibroids, PCOS and Endo 🙄

A myHSteam Member

Women with hidradenitis suppurativa (HS) may indeed experience challenges with fertility. Here are some key points:

- Infertility Rates: Studies have found that women with HS often experience higher… read more

posted July 8
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