Hidradenitis Suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1931 questions

Hello, Wondering If Anyone Else Is Also Dealing With Lupus. I Also Just Started Talz, Does Anyone Else Take This, And Do You Find It Works?

A myHSteam Member asked a question πŸ’­

Has Anyone Had Trouble Healing From Armpit Surgery? Also Has Anyone Had Arm Pain In The Forearm Area Once You Have Had Armpit Surgery?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Hey there! I had a wide excision on my left arm put with skin graft. I ended up getting infection post surgery due to the initial (small) wound vac failing. Once I rented a big wound vac and was on iv… read more

posted May 31

Hi I'm Going To Use Hibiclens On My Daughter's Armpit For The 1st Time, Has It Helped Anyone?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Glad to hear, thank you!

posted June 2

How Do I Lose Weight Without Breaking Out?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Losing weight without triggering hidradenitis suppurativa (HS) flare-ups can be challenging but manageable with the right approach. Here are some tips:

1. Dietary Changes
- Whole Food,… read more

posted May 29

What Vitamin's Can I Take Daily To Help My HS?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Legit asked the same but the above pretty much covers it just ensure to research the dosages esp with zinc at most a 10mg will suffice I’ve had an overdosing with that because mgs are sold much higher… read more

posted 7 days ago

Hydroxym 2% Gel Experience?

A myHSteam Member asked a question πŸ’­

Can anyone tell me their experience using this? I was prescribed this today ( not exactly for hs but know it has been used for hs). Doc said to use it anywhere EXCEPT face and groin ( due to it thinning the skin). Which ive heard ( actually thats what terrifies me). Kinda looking for an overall personal experience and if u were given it for something other than hs if that makes sense. Since i know some people have multiple skin condition

A myHSteam Member

It can help if you continuously use it exactly how prescribed, it stopped working for me after awhile

posted June 5

What To Take For Extremely Bad Pain 😭

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Try a cream called my magic healer to rub onto the boils! It’s a literal life saver, following take a couple Tylenol.

posted May 31

Is Surgery Only Way To Remove Or Reverse Tunneling An Is There A Way To Close Open Wounds Weeping An Stop Fluid Build Up In Tunnels

A myHSteam Member asked a question πŸ’­

Stage 3 I think with tunnels an open wounds

A myHSteam Member

πŸ˜πŸ‘‡πŸ‘‡ groin surgery to remove a track i had
No pain killers no pain and i could walk no sweat
HS devil πŸ˜ˆπŸ”« killed by surgeon great bloke he is πŸ‘
πŸ’ͺ 😁

posted May 29

What Do You Guys Do For The Scarring? I Have Really Bad Scarring That Makes Me Feel So Embarrassed. 😭

A myHSteam Member asked a question πŸ’­

I haven't officially gotten a diagnosis yet but my doctor is pretty sure this is what I'm dealing with. By all the googling I have done I'm like 98% sure I have HS. But no diagnosis at this time. The tips I've learned seems to help a lot. But I still get the flare ups. only in one spot tho, by my butt cheeks. This obviously makes me feel very self conscious in the intimacy department. Does anyone have any tips to deal with the scarring?

Do Anyone With Hs Struggle With Thyroid Issues?

A myHSteam Member asked a question πŸ’­
A myHSteam Member

Hi tiesha2 I have a thyroid disorder I've been on levothyroxine for close to 25years I have struggled with weight issues every since puberty and now in my 50s I have diabetes. Welcome to our group

posted May 27
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