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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do You Cope With Seasonal Changes And HS?

By A myHSteam Member 18 answers

What's A Common Misconception About HS?

By A myHSteam Member 42 answers

Could You Share Any Dietary Changes And Tips That Have Helped With HS?

By A myHSteam Member 33 answers

Are You Frustrated With Finding Effective Treatments For HS?

By A myHSteam Member 35 answers
2202 questions

Any Suggestions On What I Can Do About The Issue Below?

A myHSteam Member asked a question 💭
Chicago, IL

I had the worst abscess under my left arm 3 years ago. I was hospitalized because at that time I had them under both breast and buttocks. Anyhow, it’s been 3 years and my left arm won’t stop draining. I mention it to my physician every time I go see him and I’m always hospitalized to receive antibiotics, but no surgery. I had surgery under both breast but never my underarm. I’m beginning to stress a lot about it because it seems to be getting worse and won’t stop draining, not to mention the… read more

A myHSteam Member

Hi Letrice. Thanks for the hug. I'm sending you a BIG HUG 🫂 back. I hope you are feeling better Sweetie. You are doing a good job. Keep up the good work and be blessed 🙏🏿

September 26

Anyone In The NYC Area Can Recommend A Plastic Surgeon For HS Surgery?

A myHSteam Member asked a question 💭
Bronx, NY
A myHSteam Member

For those considering surgery for hidradenitis suppurativa (HS) in the NYC area, it might be beneficial to consult with a plastic surgeon. Dr. Ariel D. Teitel, a clinical associate professor of… read more

September 24

Cosentyx Vs Humira?

A myHSteam Member asked a question 💭
Grand Rapids, MI

Currently on Humira and very unhappy with lack of results. Looking at other options

A myHSteam Member

I started AMJEVITA today. I’ll post how it goes. Taking another shot in two weeks

September 23

Has Anyone Found That They Get A Flare Up When They're Already Ill/sick?

A myHSteam Member asked a question 💭

I've recently come down with a cold/flu but before I started to feel sick I got a really bad flare up and a mouth ulcer/canker sore. I'm wondering if illness might bring on a flare up or if a flare up might bring on illness. Either way it feels like a double whammy attack on my body!!

A myHSteam Member

Yes, it's possible for illness to trigger a flare-up of hidradenitis suppurativa (HS) or for a flare-up to coincide with illness. Here are some key points from my knowledge base:

- Flu-Like Symptoms… read more

September 21

Hey Community! Can Everyone Share Their Experiences With HS? What Causes Your Flare Ups? How Do You Prevent Your Flare Ups?

A myHSteam Member asked a question 💭
Flint, MI
A myHSteam Member

Living with hidradenitis suppurativa (HS) can be challenging, and understanding what triggers flare-ups is crucial. Here are some common triggers and prevention tips based on my knowledge base:

read more

September 20

Ladies With Hormonal IUD. Did Your Flares Start/get Worse When You Got The IUD?

A myHSteam Member asked a question 💭
Troy, NY

I got my Kyleena IUD placed back in 2019. I got my first ever flare up a month later and have been dealing with them ever since. I’m starting to think that it is directly related to my hormonal BC. Has this happened for anyone else?

A myHSteam Member

Now that I think of it I had gotten a mirena in like 2008 -2011 and it started about then and got way worse by 2015...

September 28

What’s Everyone’s Food Triggers? If You Have Any?

A myHSteam Member asked a question 💭
Bronx, NY
A myHSteam Member

Elaina....on keto you mainly eat meats (any kind.....bacon, pepperettes, beef pork chicken, fish... etc....Any veggie......some have some sugar like corn and carrots, but I eat all of them.....salads… read more

September 25

How Is Everyone Today? I Hope The Day Wasn’t Too Hard On You 💗

A myHSteam Member asked a question 💭
Bronx, NY

Is There Any Correlation Between The Birth Control Nexplanon And HS?

A myHSteam Member asked a question 💭
Lake Elsinore, CA

I have also recently tested positive for allergy to all grains including rice and corn. Never had problems before. I have had several anemias and moderate bone marrow failure since infancy to include neutropenia, thrombocytopenia, and aplastic anemia. I also recently tested slight positive for prp protein but no syphilis. I don't smoke and I'm not obese but my HS is considered severe, I'm not able to take HS meds due to my anemia. I'm a 24 year old female.

A myHSteam Member

I don’t know for sure but after my daughters birth via c section I went on nexplanon and almost instantly my HS went haywire and has unfortunately gotten worse since, been 3 years. I did ride it out… read more

September 15

How To Get Rid Of The Smell From The Leaking Lesions

A myHSteam Member asked a question 💭
Perryville, AK
A myHSteam Member

Managing odor from leaking lesions due to hidradenitis suppurativa (HS) can be challenging. Here are some strategies based on my knowledge base:

- Use Antiseptic Washes: Clean the affected area with… read more

September 14
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