Hidradenitis suppurativa Questions and Answers | myHSteam

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1637 questions
Anyone In The Stellenbosch/ Cape Town Area Who Know's Of Any HS Treatment And Where To Get It Please Let Me Know.
A myHSteam Member asked a question 💭

I had my first encounter with HS in 2022 had to get it surgically drained . About 2 weeks ago i had my second one after 2022 , this one was way worse and more painfull , also had to get it surgically drained felt like I wanted to die 😭 . The wound is currently busy to heal ,its been a week after drainage (any tips on how to speed up the wound healing ) .Just really need some advice on how to treat HS and if there's any treatment/supplements one can use.

A myHSteam Member

I'm so sorry you're going through this...I've had it for years and it can be dibilitating for me at times...I found once it's opened up and drained mostly, to use a good bandage for a day or two,to… read more

posted 6 days ago
Starting Rifampicin And Clindamycin For 3 Months Soon Which I Hated When I Was On It Last . What Have Your Experiences With This Combo Been?
A myHSteam Member asked a question 💭
One Thing I'm Curious About Is I Know Smoking Cigarettes Make Hs Worse How About Weed? Or Edibles. Also Curious If Alcohol Does Or Just Beer
A myHSteam Member asked a question 💭

Just trying to get a idea what I should stay away from or if drinking certain drinks is better for you then other with the condition we have. Also was curious about cannabis for pain solution.

A myHSteam Member

They're doing a study on it at the moment and they say it's great for inflammation which would help HS. I believe it's the cure for everything, but I just use edible CBD.

posted 2 days ago
How Do You Know What Stage Of HS You Have I Feel Like Mine Has Been Getting Worse An Definitely Seems Like Stage 2 At The Least.
A myHSteam Member asked a question 💭
A myHSteam Member

Me too.

posted 4 days ago
Has Anyone With HS Been Also Diagnosed With Fibromyalgia And If So, Do You Notice A Link Between A Flare Up Of The Two Conditions?
A myHSteam Member asked a question 💭
A myHSteam Member

Thanks. I’m currently in a flare(for past couple of months) and have noticed my HS worse. It seems to be spreading. Recently moved and changed to a new GP practice and went about the lesions after… read more

posted March 21
I'm Hearing A Lot About Diet With HS And I'm A Bigger Woman, So I'm Asking Has Anyone Had Success With HS Decreasing With Rapid Weight Loss?
A myHSteam Member asked a question 💭
A myHSteam Member

I tried for about 6 months. Cut many things adverse to HS but the sugar part is hard. After research I have found that a diet will improve your health in every area, there is nothing scientifically… read more

posted March 19
Has Anyone Experienced Remission From HS? If So Do You Remember What You Did To Get There?
A myHSteam Member asked a question 💭
A myHSteam Member

I believe like DNA we are different and that is why some things that work for you may not work for others. We just have to keep fighting this beast until we find what works for us.

posted 6 days ago
Has Anyone Had HS On Their Face If So What Was The Outcome
A myHSteam Member asked a question 💭
My Doctor Just Put Me On A Medication Called Spironolactone 100 Mg Hopefully This Helps! Is There Anyone Else On This Medication?
A myHSteam Member asked a question 💭
A myHSteam Member

I'm on it as well. It works with consistency. Definitely will have you going to the bathroom it's also a diuretic

posted 7 days ago
Have Different Led Lights Like The Red Or Blue Used For Facial Skin Helped Anyone?
A myHSteam Member asked a question 💭
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