Hidradenitis suppurativa Questions and Answers | myHSteam

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1256 questions
Spreading?
A myHSteam Member asked a question 💭

I only have one small area that’s broken out with moderate HS. Can and how does this spread to other areas on the body?

A myHSteam Member

Yes ma'am

posted 3 days ago
High School Counselor Working With A Student With HS Looking For Suggestions Or Examples Of Appropriate Accommodations In High Schools?
A myHSteam Member asked a question 💭

In particular, the unpleasant odor causes absences and when present, the odor is causing a disruption for other students and teachers in the classrooms. Its such a hard situation for everyone and I just want to find something that will help my student both academically and socially.

A myHSteam Member

I did have a conversation with the parties involved today. Homeschool is not an option but the conversation was great. You all gave some fabulous ideas that I’ve shared with the family and in 3… read more

posted 5 days ago
Itching!!
A myHSteam Member asked a question 💭

Does anyone notice itching as your hair grows? Anywhere on your body? HS is related to sooo many other issues. I have terrible eczema and, breakouts on my scalp and, my body as my hair grows!

A myHSteam Member

What is sea breeze?

posted 1 day ago
What Is Everyone’s Feeling On Methotrexate?
A myHSteam Member asked a question 💭

Today my doctor prescribed methotrexate. I am also on remicade at the highest dose every 4 weeks with no improvement. I am also on metformin 1000 mg a day. I haven’t saw much of a change. My doctors prescribed methotrexate to add to my medicines. I am worried about side effects as well as fertility in the future. I am not planning to have kids now but in the future I would love too. I am 22 and would like to keep all options open. If anyone has any facts/opinions please let me know

A myHSteam Member

Is it a dermatologist, does the Dr. know anything about HS. That's a lot of meds. I would be concerned about your mental. Please get a second opinion. Keep searching, this is your life not there's… read more

posted 3 days ago
What Is The Suggested Deodorant To Use With This Condition? Affordable But Yet Reliable.
A myHSteam Member asked a question 💭
A myHSteam Member

None is better

posted 5 days ago
Has Any Heard Of Using Anna's Wild Yam Cream? If So, What Were The Results? I Heard It Aids With Hormones.
A myHSteam Member asked a question 💭
How Do Treat HS On Your Inner Thigh
A myHSteam Member asked a question 💭
What Is It For You ?
A myHSteam Member asked a question 💭

My question for you is ? What is the worst part of your HS . I know the answer is all of it but what is the one. The pain, scars,mental stress, or the smell? For me it's all .But the smell is it for me I've had this shit for 30+ years and the every day pain I guess is something I've got used to over the years and the scars really don't bother me but I do feel bad for you ladies and the mental is I will not let HS defeat me I will fight this shit until there is a cure or until they put me in… read more

A myHSteam Member

I have always used gauze and bandages and tried to ignore the pain. It has worked, I think I am able to deal with pain after ignoring it for years. I REFUSE to let HS run my life!

posted November 28
Does Any One Have A Link To Get On Disability?
A myHSteam Member asked a question 💭

i haven't been able to work in over 9 months and i won't be able to work after my arms heal. i just beed help.

A myHSteam Member

I received SSDI at 47. I have physical issues but I approached more with mental issues and I was approved within 3 months for mental disorders. I have stage 3 HS and other physical limitations but… read more

posted 5 days ago
Best Over The Counter Skin Care Products?
A myHSteam Member asked a question 💭

Have you used any good products to help reduce swelling or to try and keep flare ups at bay?

A myHSteam Member

I actually read that here about sudocrem yesterday ran out and got some germolene had a relatively good sleep compared to usual with pain under arms

posted November 24
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