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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Just Want To Share So Everyone Will See My Story

Just Want To Share So Everyone Will See My Story

Just added my self to this ok so I have had this scene my after having my first child my mother had them grandmother. So been to doctors all this time and for about the last few years the clusters have went away mostly my gynecologist is the closeness to being right I think they told me it wS ingrown hairs scratching with dirty nails drinking caffeine hereditary smoking eat. OK so I was on birth control wich was iud still getting clusters so it was time to get my iud switched out doctors got it… read more

Legal Support For Misdiagnosis

Legal Support For Misdiagnosis

Hi — in January 2020 I had surgery to remove a cyst from my breast by breast surgery team. However, I kept getting the growths in the same spot for the months following the procedure, and it even grew in the other breast and was even more painful. I found out in August 2020 from a dermatologist that I have HS. Has anyone ever experienced a misdiagnosis that led to surgery?? If so, have you sought out legal action? Since seeing the dermatologist and getting on a doxycycline pill and clindamycinread more

Are There Any Remedies Or Medications I Could Find To Lessen The Pain?

Are There Any Remedies Or Medications I Could Find To Lessen The Pain?

So I started Humira in December of 2021. I really liked all of the effects and things that it gave me the freedom to do. Well recently i finished my second 3 mon prescription. I was told id get the medicine for a year but it was actually for a total of 6 months and in 2 increments of 3 months worth of medication since my doctor instructed me to take it once a week. Well anyways I cant get a new prescription until i see my doctor again and my appointment isnt until July 25. My is that since ive… read more

Beer And HS.

Beer And HS.

My question is probably out of left field but here we go. Since my HS diagnosis I've been trying to nail down triggers, especially food and drink. I've had great success lowering incidents by removing dairy and anything with yeast in it like bread.

However, I love beer. But since beer is brewed with yeast typically, I had to give it up (with the occasional exception).

Then I had a flash of inspiration. Pasteurizing kills the yeast bacteria, making me think it may be OK and not be an outbreak… read more

Good Dermatologist In Palm Springs, CA Area?

Good Dermatologist In Palm Springs, CA Area?

Does anyone know of a good dermatologist in thePalm Springs, CA or Southern California area? I’m having a hard time finding a dermatologist that takes my HS seriously and knows enough about it to prescribe proper treatment. Any referrals would be greatly appreciated!

What Are The Best Ways To Keep Boils From Happening?

What Are The Best Ways To Keep Boils From Happening?

I am just now actually looking into what this doctor said that I have. For several years now, I just kept getting boils in my groin area and I felt like I wasnt washing well enough. I keep getting anerobic bacterial infections. The hair follicles that the boils start in become these huge open places that never totally close up. Also my scars are darker. I started putting bleach into my bath water like my nephew does during wrestling season to try and keep clean. Then I started getting then on my… read more

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