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Well not a question but this goes out to all of you my HS family I just wanted you all to know I do think about each and everyone of you and wish I could perform miracles and cure each one of you but we all know I can't do that but I can send all of you a big ole fat and very meaningful Hug so hang in there all of you and we shall see what tomorrow will bring ( love you all)
Trina......I wonder if you wear gloves with the fingers cut out if that would help protect your hands??
Pain from the cyst/abcess on my stomach keeps me up. The abcess is on top of a very large hernia. Wound Care says it won't heal until I get the hernia taken care of, surgeon says have to lose weight… read more
This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings
Hello Lynnette2, yes! I'm with you on this. It's so sad that I thought I was the only one for years. At 14 years old my own doctor told me she didn't know what it was. And why I had so many. It was… read more
I'm starting to notate everything I'm eating daily. I eat Ice cream year round. I eat Bread, almost all vegetables, a lot of different fruit, Seafood, Chicken, Beef, and Turkey. No Pork. I drink Cold Drinks sometimes. What's a good diet for HS? Am I doing ok with listing what I'm eating? Where to get a Nutritionist?
@A myHSteam Member I hear you and I am so happy you have found your answer. I just don't think that will work for me. I was also told that it was an internal thing. Most likely an inflammatory… read more
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
They like to say obesity is a factor, but they can't say why. Which means it's really not.
Hello everyone! We know HS smells lol. I’ve found you are what you eat! Going plant base has helped tremendously with my smell, but recently I couldn’t shake the pungent smell. My friend told me about chlorophyll internal deodorizer and it works! I took it last night and this morning and I don’t smell lol! Maybe should try it? Got it from vitamin shop and it’s on Amazon too!
Thanks for sending me a hug, here's a hug to you in return.
I’ve had HS symptoms for about a year but was diagnosed about 6 months ago. I’ve noticed that every time I have a flare I feel run down, my body hurts, and I just want to sleep. Does anybody else experience this?
I feel so heavy and like thick
Some people believe that HS is contagious skin disease or think it's some form of STD , so what information would you like to give to people about HS and about living with HS?
That it is due to uncleanness. I believe that is the reason it has been covered up for so long. People on here have had this thing for 40 years.
How many people have full time jobs ? I work 40 to 50 hours a week.
I read this post and wonder how people have time to do all this stuff and work full-time
lol
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