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I'm Thinking About You
A myHSteam Member asked a question 💭

Well not a question but this goes out to all of you my HS family I just wanted you all to know I do think about each and everyone of you and wish I could perform miracles and cure each one of you but we all know I can't do that but I can send all of you a big ole fat and very meaningful Hug so hang in there all of you and we shall see what tomorrow will bring ( love you all)

posted September 4
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A myHSteam Member

Eddie, Hi! I looked up a lot of Dallas providers on here and posted them for you. I hope you see them.

posted September 12
Anybody Else Not Overweight?
A myHSteam Member asked a question 💭

I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD

posted February 26, 2020
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A myHSteam Member

No-one else in my family had or has it.

posted September 8
Does Anybody Else Experience Fatigue And Weakness During An HS Flare?
A myHSteam Member asked a question 💭

I’ve had HS symptoms for about a year but was diagnosed about 6 months ago. I’ve noticed that every time I have a flare I feel run down, my body hurts, and I just want to sleep. Does anybody else experience this?

posted February 9, 2021
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A myHSteam Member

I feel so heavy and like thick

posted July 16
Not A Question Just Letting Go
A myHSteam Member asked a question 💭

I really don't know why I'm even posting this I guess I'm just comfortable here on this site I consider y'all my friends. Well here we go a little while back I had to spend a couple of months in jail it was due to a DWI I had gotten yes I know I'm a bad person for that. I just read a article about white lie's that's what made me think of this. While in there I told some of these little lies to other inmates I was trying to hide the fact that I have HS I didn't feel they would understand well… read more

posted November 10, 2022
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A myHSteam Member
posted March 22
Has Anyone Tried Medical Marijuana As Part Of A Treatment Plan?
A myHSteam Member asked a question 💭

My worst triggers are meat/dairy and stress mixed with heat/humidity. I have anxiety and depression which I have medical marijuana to help with, it's VASTLY reduced my outbreaks, even when I don't eat the way I'm supposed to.

posted September 2, 2020
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A myHSteam Member

Where it is grown is important. Marijuana plants clean the soil of toxins, old pesticides etc. The plant uptakes the toxins. They considered growing it to clean up toxins in agriculture areas. Rice… read more

posted January 27
Let's All Come Together On How We Can Have A Major Campain Against HS Nation Wide
A myHSteam Member asked a question 💭

This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings

posted March 21
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A myHSteam Member

ER docs are usually trained for life threatening kind of emergencies. Otherwise they want you to go to an urgent care place. That said! They do not realize that the PAIN is life threatening… read more

posted April 21
Can The Doctors On This Site Provide Educational Material? There Are So Many Doctors That Have No Idea How To Treat This. How To Treat.
A myHSteam Member asked a question 💭

Could you provide these to us to give to our doctor's?

posted April 12, 2021
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Has Anyone Here Had Their Vitamin D3 Levels Tested?
A myHSteam Member asked a question 💭

I had my first instance in my underarms in 2016 and had surgery to remove. I had my Vitamin D levels tested then and they were in the "severe deficiency" range. I've been taking supplements ever since to get my levels up but haven't been so consistent lately with it. My next flare up happened a few months ago during the Covid lock down (under a lot of work stress) kind of in the groin area but seemed to clear up quite quickly once I started taking my Vitamin D3 everyday again. Has anyone else… read more

posted August 4, 2020
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A myHSteam Member

I did have a vitamin efficiency and they put me on folic acid and multivitamins
But I can’t remember what it was for but you can get these free by the doctor in the uk
But I am diabetic so I don’t… read more

posted July 14, 2022
Covid
A myHSteam Member asked a question 💭

Hi Team. Has anyone ever got the Covid vaccines and the Covid Boosters? Also, there's another Covid injection. Would you get that and if not, why not?

posted April 12
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A myHSteam Member

I mostly agree with you Kelly. I prefer a natural method, and letting your immune system do what it supposed to. I did have three vaccines, probably out of fear of covid. I live in a sparsly… read more

posted July 27
What Triggers Make HS Symptoms Worse? How Do You Manage These Triggers?
A myHSteam Member asked a question 💭
posted March 22
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A myHSteam Member
posted June 5
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