Connect with others who understand.

sign up log in
About myHSteam

Hidradenitis suppurativa

Questions + Answers

Don't see your question? ask question
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Does Anybody Else Experience Fatigue And Weakness During An HS Flare?

Does Anybody Else Experience Fatigue And Weakness During An HS Flare?

I’ve had HS symptoms for about a year but was diagnosed about 6 months ago. I’ve noticed that every time I have a flare I feel run down, my body hurts, and I just want to sleep. Does anybody else experience this?

A myHSteam Member said:

Are you taking iron? Because with HS it tends to drain you!! Keep your iron intake up!!!

posted about 1 year ago

Has Anyone Tried Medical Marijuana As Part Of A Treatment Plan?

Has Anyone Tried Medical Marijuana As Part Of A Treatment Plan?

My worst triggers are meat/dairy and stress mixed with heat/humidity. I have anxiety and depression which I have medical marijuana to help with, it's VASTLY reduced my outbreaks, even when I don't eat the way I'm supposed to.

A myHSteam Member said:

I've been using cbd oil and gummies, it helps with pain haven't gotten a serious out break besides my spine one. Meat and dairy trigger mine a lot too I've "disciplined myself about cheese its my… read more

posted almost 2 years ago

Has Anyone Here Had Their Vitamin D3 Levels Tested?

Has Anyone Here Had Their Vitamin D3 Levels Tested?

I had my first instance in my underarms in 2016 and had surgery to remove. I had my Vitamin D levels tested then and they were in the "severe deficiency" range. I've been taking supplements ever since to get my levels up but haven't been so consistent lately with it. My next flare up happened a few months ago during the Covid lock down (under a lot of work stress) kind of in the groin area but seemed to clear up quite quickly once I started taking my Vitamin D3 everyday again. Has anyone else… read more

A myHSteam Member said:

I was prescribed D3 for my energy levels because I was sufficient as well. Alongside clindamycin it really helped!

posted over 1 year ago

Dressings To Promote Healing

Dressings To Promote Healing

Hi all,
I just got diagnosed but have suspected I have hs for a while. My problem area is my groin. I've picked at any bumps that occur which means I have some open wounds. I don't have the Typical puss, but just lots of red angry skin that's open. Lots of blood/fluid initially came out but is stable now. I'm on oral minocycline and clindamycin ointment. This one area just won't freaking heal, and it's right on the underwear line. Any tips?

A myHSteam Member said:

I have one in the same spot on both sides. I've now decided that women's boxers, or long undies -as my Mom calls them, works best for me. They don't rub and keeps my skin from rubbing as well Great… read more

posted about 1 year ago

How To Prevent The Smell

How To Prevent The Smell

Since I was diagnosed with HS I’ve noticed a smells that too me is a horrible smell under my armpit, yes I know maybe sweat could be involved but it’s not that kinda smell. I shower 3-5 times a day just so It’s clean and doesn’t smell. Can anyone recommend me something to help with this if you’ve had it.

A myHSteam Member said:

Sorry. Hibiclens does have a website

posted almost 2 years ago

Diagnosis

Diagnosis

What are symptoms?

A myHSteam Member said:

I highly recommend 3m microfoam as an alternative to band aids...I can't stress this enough. It's my lifesaver.

posted almost 3 years ago
Already a Member? Log in