I’ve had HS symptoms for about a year but was diagnosed about 6 months ago. I’ve noticed that every time I have a flare I feel run down, my body hurts, and I just want to sleep. Does anybody else experience this?
Are you taking iron? Because with HS it tends to drain you!! Keep your iron intake up!!!
My worst triggers are meat/dairy and stress mixed with heat/humidity. I have anxiety and depression which I have medical marijuana to help with, it's VASTLY reduced my outbreaks, even when I don't eat the way I'm supposed to.
Where it is grown is important. Marijuana plants clean the soil of toxins, old pesticides etc. The plant uptakes the toxins. They considered growing it to clean up toxins in agriculture areas. Rice… read more
Could you provide these to us to give to our doctor's?
I had my first instance in my underarms in 2016 and had surgery to remove. I had my Vitamin D levels tested then and they were in the "severe deficiency" range. I've been taking supplements ever since to get my levels up but haven't been so consistent lately with it. My next flare up happened a few months ago during the Covid lock down (under a lot of work stress) kind of in the groin area but seemed to clear up quite quickly once I started taking my Vitamin D3 everyday again. Has anyone else… read more
I did have a vitamin efficiency and they put me on folic acid and multivitamins
But I can’t remember what it was for but you can get these free by the doctor in the uk
But I am diabetic so I don’t… read more
If you're not on my team yet I welcome you to join my team because unfortunately we are all in this together and I value everyone's comments and advice I also offer my support to any of you who needs it I've been dealing with this shit for 30+ years already so feel to read my story if you want it's only a small portion of what I've been through and most of it on my own I'm sorry that you share this pain in the ass of a disease with me but you have to admit it's nice to know your not alone ( I… read more
Jennifer, Lol 😂 How true. Really, because the only ppl that get it are the ones that have it. My husband of 32;years thinks I obsess about it. I am sorry you were treated that way by the doctor… read more
If I ever win the lottery we're all gonna get together because y'all are f---ing awesome thanks my HS family 😂
I read an article online, not on this site, saying that Abbvie has had a patent on Humira for 20 years. Normal patent is usually 7 years. It was saying that some biologicals would be available soon. They named Rinvoq and Skyrizi. I don't know if competition would raise or reduce costs?? A company called Amigen was mentioned. Just thought it was interesting and wanted to share
How many people have full time jobs ? I work 40 to 50 hours a week.
I read this post and wonder how people have time to do all this stuff and work full-time
I am a full time worker I found emu aid max and started zinc , vit d, and no issues anymor. Haven't missed work in almost a year. Emu aid Max relieves and releases. Amazing
I really don't know why I'm even posting this I guess I'm just comfortable here on this site I consider y'all my friends. Well here we go a little while back I had to spend a couple of months in jail it was due to a DWI I had gotten yes I know I'm a bad person for that. I just read a article about white lie's that's what made me think of this. While in there I told some of these little lies to other inmates I was trying to hide the fact that I have HS I didn't feel they would understand well… read more
To you Ann that was a great response
I don't have a question I just wanted to say good morning to you my new HS family I hope everyone that reads this got a good nights rest with minimal pain but I'm sure that's not the case for some of us but hey today is a New day so let's all pull up our selves by the bootstraps and march ourselves out into this world and try and be kind to everyone we come in contact with. It's not always easy to do but remember what we deal with everyday we're strong and tuff and damn it just awesome… read more
Absolutely thankful for all y’all!
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