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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How To Prevent The Smell

How To Prevent The Smell

Since I was diagnosed with HS I’ve noticed a smells that too me is a horrible smell under my armpit, yes I know maybe sweat could be involved but it’s not that kinda smell. I shower 3-5 times a day just so It’s clean and doesn’t smell. Can anyone recommend me something to help with this if you’ve had it.

A myHSteam Member said:

In the UK we don't have a Walmart Bluemarlin... Will Google it now, thanks

posted about 2 months ago

Dressings To Promote Healing

Dressings To Promote Healing

Hi all,
I just got diagnosed but have suspected I have hs for a while. My problem area is my groin. I've picked at any bumps that occur which means I have some open wounds. I don't have the Typical puss, but just lots of red angry skin that's open. Lots of blood/fluid initially came out but is stable now. I'm on oral minocycline and clindamycin ointment. This one area just won't freaking heal, and it's right on the underwear line. Any tips?

A myHSteam Member said:

I don't either! The derm that diagnosed me said it's for the best as you want to allow the area to breathe.

posted 2 months ago

Diagnosis

Diagnosis

What are symptoms?

A myHSteam Member said:

I highly recommend 3m microfoam as an alternative to band aids...I can't stress this enough. It's my lifesaver.

posted 10 months ago

Any Tips For Reducing Flare Ups In The Summer?

Any Tips For Reducing Flare Ups In The Summer?

With the summer coming and the increase in temperature in my area, I have been having a lot of flare ups in my groin. I go on and off doxycycline, as well as use benzaclin topically. I have gained some weight (that I'm trying to lose) so I have been sweating more. Any tips for preventing or helping flare ups in the summer heat?

A myHSteam Member said:

I use calendula powder its much better than talc or deodorant.

posted 29 days ago

Is There Any Operation To Be Done For Patient Having Hydranitis Suprativa?

Is There Any Operation To Be Done For Patient Having Hydranitis Suprativa?

A myHSteam Member said:

I had surgery to remove a lump between my breast that would react to 2 lots of antibiotics. It’s never come back

posted 26 days ago

Clear/slightly Discoloured Liquid Leaking From Armpit Scars?

Clear/slightly Discoloured Liquid Leaking From Armpit Scars?

For weeks and weeks now, I have had a clear/slightly discoloured liquid leaking from my inflamed armpit scars. It smells pretty old and musty, but is continuous and I don't know how to prevent it. Keeping it covered doesn't help, letting it get air doesn't help, and to be honest I don't actually know what it is. Any help would be greatly appreciated.

A myHSteam Member said:

Do the wounds close after using the hydrogen peroxide

posted about 2 months ago

Does Anyone Have Issues With Cysts Due To Their HS?

Does Anyone Have Issues With Cysts Due To Their HS?

Since being diagnosed with HS I have become prone to cysts in different areas that have required surgery to remove. Has anyone else had anything like this happen and what have you found helps?

A myHSteam Member said:

Yes I had to have both of mine removed as they got infected and worse when I was on rocaccutane.. Very nasty drug

posted 4 months ago

Has Anyone Been Approved For SSI Due To HS Diagnosis?

Has Anyone Been Approved For SSI Due To HS Diagnosis?

Since I have been diagnosed with HS keeping a job has become somewhat difficult.. with me having constant flair ups and sometimes the difficult task of wearing clothes that are appropriate I have lost jobs? Does anyone relate

A myHSteam Member said:

I had this previous issue at my old job. The best thing to do is get a form called FMLA this gives you a certain amount of days that you're able to be… read more

edited, originally posted 6 months ago

How To Live With Hs And Have A Normal Life

How To Live With Hs And Have A Normal Life

Hi I’m 20 years old I been dealing with this since I was 16 I just want to be an average 20 year old I just want to be normal how can I live a Normal life dealing with hs please help

A myHSteam Member said:

Thankyou lilybird I'll try this thankyou

posted 22 days ago
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