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Has anyone had surgery for their tunnels yet? And if so did you have a wound vac? Its been hard for me getting use to the wound vac and it is causing me stress a lot of stress!!! And pain!!! Any advice from those of you who have experienced the wound vac any words of wisdom would be great
Omg that sounds so scary!!! I'm so glad your better now
Dr. Kimball mentioned Hormonal Treatment for HS instead of Antibiotics. Would Hormonal Treatments be recommended for older ladies or for men?
Fatima, Do not know the answer. I took Vivelle patches till age 50 after my hysterectomy. It might would help. My h.s. was not as bad while on them.
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
I'm not
My top Survival would be keeping those areas very dry
This is so important to wash body with antibacterial soap and then dried up really good making sure that your body is really really dry
and… read more
Hello! Brand new to this group of support! I have not been diagnosed with HS (yet) but I'm positive this is what I've suffered with for 10-15 years. I've looked for answers online here and there and finally learned about HS recently. All my symptoms seem to match. I felt such relief to know it's a real thing that so many live with! I remember at the beginning going to a doctor about the bumps in my inner thighs and he basically shrugged his shoulders and said it's probably just chaffing from… read more
Hi Lauram......The drag about HS is that most Dr's don't seem very well educated about HS....the same is for dermatologists. There are a few out there, but it's hit and miss whether you find one… read more
I bought a filter from Amazon for my shower that has helped tremendously. It fits between the actual spout and the shower head. Where I live, the water is hard and disgusting! The filter really helps… read more
For those of you on Humira, what is your dose? Mine is 40 ml once a week. At first seemed to work, but is not so much now. Wondering if I need a higher dose or it just doesn't work on me.
Fatima, Thank you about the sisters
Lately on both I have been switching off bandaging with Derma E that I found at Walgreens. It is vitamin E and Tea tree oil cream. And, sometimes I use Silvidene… read more
It is what it is. What are you going to do with yours.
Hi so I’ve just started my journey into finding out if I do indeed suffer from HS. I’ve been suffering for around 20 years but I’ve never looked into an any diagnosis because I thought that was just me. I’ve recently had a pilonidal cyst removed and I’m on a round of antibiotics as my stitches have become infected :(
My doctor has also prescribed me a low dose antibiotic to take for 3 months, a wash and nasal cream to be used for 5 days before they consider referring me to a dermatologist. Did… read more
This is actually what HS will look like in the very beginning 👇👇😁
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