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Hidradenitis suppurativa

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hobbies

Hobbies

what hobbies do you guys/ladies all have??? what takes your mind off your pain???

A myHSteam Member said:

A hot water bottle. I boil the water to get it extremely hot

posted 4 months ago

Dressings To Promote Healing

Dressings To Promote Healing

Hi all,
I just got diagnosed but have suspected I have hs for a while. My problem area is my groin. I've picked at any bumps that occur which means I have some open wounds. I don't have the Typical puss, but just lots of red angry skin that's open. Lots of blood/fluid initially came out but is stable now. I'm on oral minocycline and clindamycin ointment. This one area just won't freaking heal, and it's right on the underwear line. Any tips?

A myHSteam Member said:

I don't either! The derm that diagnosed me said it's for the best as you want to allow the area to breathe.

posted 2 months ago

Has Anyone Had Armpit Surgery?

Has Anyone Had Armpit Surgery?

How was it? And did it help? Pretty nervous about it.

A myHSteam Member said:

I have had 4 surgeries in my armpits. I've been on doxcycline for almost a year. I'm on remicade iv treatments, I use hibiclens, which you can get at… read more

posted 4 months ago

Anybody Else Not Overweight?

Anybody Else Not Overweight?

I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD

A myHSteam Member said:

I am so sorry :( I am also on daily oral doxycycline and topical clindamycin and have been for about 8 years now. Panoxyl is a good wash, just be… read more

posted about 1 month ago

Boils On Face.

Boils On Face.

Does anyone else suffer with boils on their face?
I get flare ups often, they are really angry and cause my face to swell really bad.
I’ve had 3 in a row last few months.
Not been properly diagnosed but, was offered surgery a long time ago on my groin area. Refused as it was so invasive.
My mum also has this condition.
Is it worth going back to doctors? Referral time in the UK can take ages to see a dermatologist.
Help and advice would be much appreciated.

A myHSteam Member said:

I get them on my face as well. I will not get them drained however, it is a pride thing. I just keep draining them and use Teatree oil, and lavender… read more

posted 4 months ago

Does Anytone Suffer Like This???

Does Anytone Suffer Like This???

I have 2 cysts/boils that have been playing up for around a month now... they pop and then come back again... any advice would be greatful <3

A myHSteam Member said:

Hi! When i have reoccurring boils i usually go to my dermatologist to get them injected, and very rarely do they come back in the same spot. Hope this… read more

posted about 1 month ago

My Dermatologist Is Prescribing Me Humira, Has Anyone Had Any Success With This Medication?

My Dermatologist Is Prescribing Me Humira, Has Anyone Had Any Success With This Medication?

A myHSteam Member said:

I have found with post humira, my knees ache and my muscles feel stiff and I have been told by a locum GP that this drug as a lot of bad side effects… read more

posted about 2 months ago

How To Prevent The Smell

How To Prevent The Smell

Since I was diagnosed with HS I’ve noticed a smells that too me is a horrible smell under my armpit, yes I know maybe sweat could be involved but it’s not that kinda smell. I shower 3-5 times a day just so It’s clean and doesn’t smell. Can anyone recommend me something to help with this if you’ve had it.

A myHSteam Member said:

In the UK we don't have a Walmart Bluemarlin... Will Google it now, thanks

posted about 2 months ago

Does Anyone Have Issues With Cysts Due To Their HS?

Does Anyone Have Issues With Cysts Due To Their HS?

Since being diagnosed with HS I have become prone to cysts in different areas that have required surgery to remove. Has anyone else had anything like this happen and what have you found helps?

A myHSteam Member said:

Yes I had to have both of mine removed as they got infected and worse when I was on rocaccutane.. Very nasty drug

posted 4 months ago

Humira

Humira

Are we high risk being on humira ??

A myHSteam Member said:

I got a letter from the NHS to say I am at a greater risk as I am on the medication but just to take extra care.

posted about 2 months ago
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