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I hi I had a hysterectomy in 2021 and I’ve had hs since I was 11 years old… I wasn’t diagnosed till I was 13 but developed it after I went through puberty. I’ve always had horrible flare ups but they have been pretty tame since my hysterectomy now I just have ance that won’t go away on top of flare ups in the same spots… I rarely get flare up in new spots. And most of them are pressure or friction based. What are your experiences?

June 28
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It's really encouraging to hear your flares have been more manageable since your hysterectomy — that's a meaningful improvement after living with HS since childhood!

Other myHSteam members have shared a range of experiences after hysterectomy and hormone changes:

- One member said after having a hysterectomy a couple of Show Full Answer

It's really encouraging to hear your flares have been more manageable since your hysterectomy — that's a meaningful improvement after living with HS since childhood!

Other myHSteam members have shared a range of experiences after hysterectomy and hormone changes:

- One member said after having a hysterectomy a couple of years ago, they hardly ever get flare-ups anymore
- Another member who had a full hysterectomy including ovaries and was then put on hormone replacement therapy (HRT) experienced a nasty flare-up, attributing it to the hormonal disruption
- One member had a radical hysterectomy at 40 and still experienced bad flare-ups regularly at age 62 The experiences really do vary widely from person to person. Hormones play a significant role in HS, and any major hormonal shift — including from a hysterectomy or HRT — can affect flare patterns differently for everyone.

If you're considering HRT or noticing changes, it's worth discussing with both your dermatologist and gynecologist together, as collaboration between the two can help find the best approach for your specific situation.

For the friction and pressure-based flares you're experiencing, loose-fitting, breathable fabrics like cotton can help reduce irritation during flare-ups.

June 28

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