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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I got HS late in life around 72. First under breasts/ arm pits but after a couple years of treating them with everything from HS page it went away. Then year later it showed up in groin, labia , pubic area and had many rupture (all.blood, and lots of scarring. It was determined to be hair follicles in each tunnel so spent a couple years pulling out follicles and draining. Tried to get laser hair removal but my dermatologist ( basically dr google) wouldn’t send in paperwork. Then recently… read more

April 27
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A myHSteam Member

Unfortunately that is right. When my current dermatologist said there was no such thing as vulvar hidrenitis I knew I had to change. Finding a female dr in Atlanta area or north ga is difficult. I got a few recommendations so will try to get an appt.

May 4
A myHSteam Member

Oh no, I hope that you're able to find a doctor who's heard of HS, MaryAnne. Unfortunately, a lot of doctors have never heard of it. When I last went to the ER, everyone who attended to me had never heard of it. Finally, they sent an older doctor who was familiar with it.

May 4
myHSteam

What a journey you've been through — and it's clear you've been incredibly proactive in managing your HS over the years. Finding the right specialist is so important, especially with a new and painful development in a sensitive area.

For finding a knowledgeable HS specialist in North Georgia, here are some practical steps:

Show Full Answer

What a journey you've been through — and it's clear you've been incredibly proactive in managing your HS over the years. Finding the right specialist is so important, especially with a new and painful development in a sensitive area.

For finding a knowledgeable HS specialist in North Georgia, here are some practical steps:

- HS Foundation Clinic Finder — Visit the Hidradenitis Suppurativa Foundation website at hs-foundation.org. They maintain a directory of HS specialty clinics across the U.S., which can help you locate a qualified specialist near you
- Request a referral — Ask your current dermatologist for a referral to a complex medical dermatologist, who specializes in difficult or rare skin conditions like HS
- Telehealth option — If a specialist isn't nearby, a virtual consultation is a valid option. Many HS specialists can examine, diagnose, and recommend treatment remotely via video
- Second opinion — You absolutely have the right to seek a second opinion, especially given your current dermatologist's reluctance to support your care Regarding the cyst near your anus, this area can absolutely be affected by HS. However, given its location, a colorectal surgeon or gastroenterologist working alongside your dermatologist would be a smart addition to your care team. A proper HS specialist can help determine whether this is HS-related or something else entirely.

Please don't delay seeking care for the ruptured cyst — infections in that area can escalate quickly and need prompt medical attention.

April 27

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