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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 28, 2024
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Members shared their experiences with hidradenitis suppurativa nodules on the buttocks, with many describing the excruciating pain and... Read more

Members shared their experiences with hidradenitis suppurativa nodules on the buttocks, with many describing the excruciating pain and challenges of treatment in such a difficult area. Several members discussed surgical interventions, including draining procedures and skin grafts, though many reported recurrences often returning worse than before, while others found some relief using betamethasone ointment, hibiclens washes, and antibiotic creams applied by trusted helpers without embarrassment. A recurring theme was the transition from Humira to Cosentyx after immune system complications like pneumonia, with many members reporting impressive results and fewer side effects on the newer medication, along with encouragement to explore pharmaceutical copay assistance programs to manage costs.

A myHSteam Member

I'm a OTR TRUCK DRIVER, I had surgery on my left butt cheek, they cut it open in several places to let them drain had to have them repack 3x a day to absorb the pus. Started out using Humria Pin. This month she's starting me on Cotentxy. Spelled it wrong, but she says it better than Humria, I sure hope so.

May 3, 2024
A myHSteam Member

Ask your doc to prescribed you some betamethasone ointment. Not a cure but it helps. Now as far as that polinidal cyst... that was an extensive surgery. Took months to heal. ๐Ÿ˜”

May 1, 2024
A myHSteam Member

Kelli..I am so sorry! My son gets the HS breakouts on his buttocks also. So painful and hard to treat. He is embarrassed to ask me for help in this area but you need help when HS rears it's ugly head. He does his hypacleanse (I know I spelled that wrong) but I have to apply his antibodic cream and observe its progress. It is so helpful to have someone who can help with this area and to please not feel embarrassed when asking for help.

May 1, 2024
A myHSteam Member

Same thing I went through.. I got surgery on thr left side Jan 2019.. it just came back in the same spot and it hurts like HELLo

May 1, 2024
A myHSteam Member

I was on Humira for a few years, it took 5 years and a new insurance company to use it. It was fairly new. This year my insurance required using the generic brand and Humira itself wasn't doing much besides having 3 skin cancer surgeries. I switched to Cosentyx and my results are impressive. My insurance covers it which is helpful because it costs more than Humira but no generic. (One thing I am not sure if people are aware that if you use private insurance like from a work place, with no aide, the pharmaceutical will give you copay assistance after your insurance's payment will help cover the remaining price balance.) I take 2 Cosentyx doses once a month compared to 1 Humira dose a week.

August 11, 2025

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Modesto, CA